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Couldn't sleep or do anything at all within the first 3-4 hours of waking. Told myself I'd take enbrel if it didn't go away after about 5-6 days. Pride is more malleable than spinal fusion. Took a shot of enbrel yesterday and was able to sleep for 8 hrs. Felt pressure and light sensitivity in my left eye again so I took a couple drops of prednislone to get on top of that straight away. Frustrating to say the least. Over 6 weeks with no meds until yesterday. Can't find any reason to think that biologics are hurting me but I know after my recent pain that they definitely weren't permenantly fixing anything. I wonder what did me in? My stress levels are really low. I didn't have the guts to figure out wether or not it was "die off" symptoms or herxing and bear through it. Right after my pressure filled stinky gas belly went away, the pain swooped in hard. Apart from pstarch, the only starch I ate was 1 cooked carrot spaced out over 2 days in four bowls of soup. I'm routing for you Dlee. Based on the foods you can tolerate and the work you've done in the last couple years, you're gut looks to be in decent shape.
I've ordered LDN and am hoping that it'll get my iritis under control and give me the possibility to stay geographically mobile. 50-100$ per month as opposed to 1500-1600$ for enbrel. That only really matters if it works though, I suppose.
I'm interested to know what your reactions will be on Monday too. Hopefully your discomfort lessens with time and will be a possible sign of fewer internal fungal issues.