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As a later individual to join KICKAS I unfortunately never had a chance to get to know Johnny Miller. I send my Condolences to his family and friends.

- Angela (Magician) -

Hi, Angie:

I don't understand what You are asking. If Your doctor is playing games with syntax, (s)he is creating a problem for You: To be honest, I never believed that You had anything else but AS, but I am not a doctor. You have been with us for a long time, and every dumb idea about this disease has been discussed--myriad WRONG DIAGNOSES, "women don't get AS," "diet has nothing to do with arthritis," "not everyone with B27 gets AS," "wear-and-tear.."

The problem with BENIGN NEGLECT is that it is NOT BENIGN: The damage is permanent and cannot be reversed. The only thing that we can be certain of is that the DOCTORS CANNOT TELL US HOW TO AVOID THIS DAMAGE, even if they suspect AS early enough. That is the raison de'etre for KA. Carol Sinclair never had any damage even after many decades; i've lived many decades with the damage CAUSED by Voltaren and caused by listening to my doctors! They are human, and are no better than their medical guilds dictate; I paid my money and took my chances!

The bone spurs could become bridging syndesmophytes; it depends upon many factors and it is a slow, painful process. The PAIN is how our bodies communicate with us that something is wrong. But You do have all the very obvious indicators of AS--and NO DOCTOR (except Theodoric of York) could ever have missed them!

HEALTH,
John

Magic, I can't believe they can see the arthritis in your spine and the positive B27, but you don't have AS?

The squaring vertebrae are classic AS. I would be very confused at this point. Man.

Love and light,

Alan, that so bites and I'm very sorry to hear it. With that big a wheelchair, perhaps you could turn it into your own camper van.

Keep on kicking old friend.

Love and light,

Hello Llight

Regret delay in responding. Your access has been updated; please let me know if there are still issues with access.
Thank You,
John