hi CC,

well, i'm alive, that's good. and not sure i feel much differently today than yesterday?

only taking 1.5 mg right now, will increase to 3 mg, then 4.5 mg, not sure when though.

took my pills at 2 am, in bed and asleep about 3 am when my muscle relaxant kicks in (thankfully it didn't interfere with that), but then woke briefly at 4 am, then woke at 6 am and ready to start my day which was crazy and couldn't get back to sleep until some time after 6:30 am, but thought i was getting up so removed my icepacks instead of getting more, so when i woke at 9:30 am, my butt was a nice big "bruise" (really the glutes and/or piriformis spasming) so got up and took more mylanta for the tummy which is doing a bit better and new ice packs and more muscle relaxant and fell back asleep at 10 am. before i woke, must have dreamt that i slept til 3 pm because when i looked at the clock i was confused that it only said 11:30 am. fell back asleep til noon.

so, don't know if this constant waking up is still me in pain and/or laying on ice or was "the insomnia" that people talk about for the LDN?

but i had gotten to a point of sleeping 4-5 hours uninterupted, so not sure?

but at least no dramatically bad side effects or anything from that first pill.

yes, i feel a bit tired today, but i've been like that for the last couple of weeks now where i've been getting so little quality sleep from the pain keeping me awake.

just too early to tell i think. but at least no headache, no new gastro difficulties that weren't already there.

before i took it i watched the videos that trudi posted at the beginning of this thread. he was truly inspirational! it gave me great hope watching it.


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)