well, certainly not a pro, and like possi said, mostly don't care what causes it, JUST MAKE IT STOP! however, with that said, if i know the root of the problem, i know better how to treat it.

for example, now that i realize the muscles are spasming because of the active trigger points, do treat the muscle spasms so the muscles don't fatigue too much and because well, they're painful in their own right. but also know that if i don't treat the trigger points, then the muscles will never stop spasming so must treat the trigger points. now, i don't know if my underlying disease makes me have this trigger point problem. i don't know why my latent trigger points become active upon stretching; all the literature tells you to stretch trigger points but i've had three or four episodes now where careful stretching has caused major trigger point activation problems. i do not understand this. i'm pretty sure my doctors and PTs don't understand it either. but i do know that 1/2 of my problem is trigger points --> muscle spasms and myofascial pain. but i don't know if that's an arthritis exacerbated symptom (have read that arthritis and joint problems are one of the things that they think contribute to trigger points) or a mechanical problem from years of desk work, etc. the only way to find out is to get a medicine for the arthritis and if the trigger points get better, then we know, and if they don't, then we know the other way.

however, the trigger point / myofascial pain does not address the sacroilliitis, which has been documented by physiatrists, and cortisone does help so that also has helped prove its inflammatory, plus the marbly feeling that the SI gets. also does not explain the hands, and feet, and knees, and elbows; arthritis though explains those plus the SI.

i only care to sort it all out because it makes the treatment more possible, but like possi said, i don't really care what it is, so long as they can treat it.

and yes, there are some things i understand, but a lot more that i don't. i might understand what, but definitely not how or why?



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)