thanks karen,

will ask about the tens at PT.

yes, you are right, no matter how much we think we've learned in managing our symptoms, sometimes they win. "sometimes you're the windshield, sometimes you're the bug".

as for the ever elusive dx? unfortunately, i think the upper back is myofacial pain from an old injury and it clouds the issue. it was only once slowly one by one just about all the joints and various tendons joined in the party, that doctors stopped just saying myofacial pain.

so when i go for the dx, have to not spend too long talking about the upper back. but i do wonder if its all part of the disease?

my trigger points definitely act like they are inflammation sites: pressure hurts them just like any of my inflamed tendons, ice and nsaids help them. ultrasound helps them the same way that it helps my tendons.

anyway, i just wish the pressure of the bed weren't so problematic, then life would be a lot easier.


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)