i have a new sort of problem. yes, i've dealt with muscle spasms for years, have the muscle relaxant, have the heat, have the ice, have the ultrasound. they all help so much, always have.

but this is much more troubling. whenever the upper back (probably trapezia) muscle has any pressure on it, unless its on ice, it goes into spasm. and since i can't sleep on my sides because of my SI and sleeping on the front, well, everything gets acted up. so must sleep on back. and when i try to sleep, i can get to sleep with muscle relaxants, a hot bath, and going to bed with gel ice packs on my back and a hot water bag on my spasming neck (the upper part of the trapezia), but then wake within an hour or two and can't get back to sleep because of the pain and this electrical storm going on inside my muscles (feels like creepy crawlies at first, then tightening, then like being stabbed with a knife (been getting up before that kicks in for the most part, now that i'm sleeping on ice, before ice, it was the stabbing that woke me up, now just the "electrical storm"). last night i actually got 4.5 hours of sleep, WOO! HOO! (not said sarcastically, honestly, that's how i felt when i woke).

having the same problem in my right glute medius, but that's easier to control with the ice.

and still not sure if its inflammation of something damaged (as i've had the same sort of pressure makes it painful in things like a torn rotator cuff or a bad wrist) or if its just confused muscles?

i haven't been able to go to work, haven't been able to sleep. the pain is nauseating at times and is messing up my stomach.

life has become very myopic. living moment to moment.

i'd pull my hair out from the frustration of it all, but don't have the energy.

has anyone ever had this problem? and more importantly, how did you break this cycle?

thanks,



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)