Hi Aussiegirl,

Welcome to KickAS. The sad thing is that when someone finds KA, it's usually because they're suffering and in pain so it's hard to say "I'm glad you're here". At the same time, given this is what you are experiencing, then I'm truly glad you're here because this is such a supportive place.

I'm glad to hear your doc has given you something strong for the pain and something like prednisone to bring down the inflammation while you find a treatment that will work for you. I spent several months last year on fentanyl patches for pain management plus oxycodone for breakthrough pain. I was trying to avoid prednisone but, in the end, gave in and went back on it and was very relieved that I did because I got rapid relief.

From your post in the other thread, it sounds as though you've been giving NSD a good try. What meds have you tried? You mention prednisone but now you have a diagnosis, you may be offered sulphasalazine, methotrexate, various biologics etc. Most people agree that regular NSAIDS are too dangerous to your intestinal system. I take celebrex which is less damaging and also take rabeprazole for GERD (reflux). I have rheumatoid arthritis, rather than AS, but they're pretty similar. I've been taking methotrexate for a while but it doesn't seem to be working yet.

You'll find lots of ideas and experiences on the site as you browse. If you feel you have women's issues to deal with as well, there is a women's forum but you will have to apply for access to it as it is highly confidential and not accessible by non-members. If you are interested in that, send a message to Mig. You can send private messages through the "My Stuff" menu.

The best of luck - I hope you begin to experience some real improvement soon and find a treatment that will give you back your quality of life.

Wendy

Rheumatoid Arthritis
Methotrexate, Celebrex, Plaquenil