Hi Aussiegirl,
Wow... you have about the same history as me...
I have swollen my knees. I also have a lot of problems with my hips and my left and some time the right hip dislocates.
THIS HAPPENS ALL THE TIME... IT IS SOOO PAINFULL!!!
I HAVE MISCARRIED 2 SETS OF TWINS AND ONE STILL BORN and have 2 children
Have inflamation of the pelvis. Had to have my appendix removed along with a hysterectomy.
I have been on meds and anitbiotics for years
I have IBS, reflux and other stomach problems from the medications.

I am now off the reflux meds (am making kifer from raw Jersey Milk)This is a lot of work, but so far it is worth not having to take the stomach meds.

I have low blood pressure except when I have broken bones.
One bout of Irisitis
Broke Back, pain in my lower back, mid to upper back, left shoulder,(Bursitis) neck,(Mine froze up) knees and legs.
Got the diagnosis months ago confirmed the diagnosis of AS.
I know what you are going though. I have had some luck with the Low Starch Diet,, but I keep falling off the wagon...
Never was good at Dieting. My Doc Gave me Indomethacin ER 75.
Gives me relief... but take sparingly, as I don't want to mess my stomach up again.
I am trying to heal my gut. I am 59... I am lucky this did not start earlier in life.
I notice when I went on a 7 day fast all my pain went away except for being very hungry. So I figured there must be something to the Starch connection.

Mac user/ Graphic Designer/Professor