Lizzy, I'm glad to hear that your case is being looked into so closely, now. It must be such a relief to know that maybe answers will soon be forthcoming. Whether or not this proves AS, or finds something completely different, you will know and can take steps toward feeling better.
Do your research, stay pro-active, and keep an open mind. Learn how to communicate effectively with your healthcare team, make sure you ask questions and then you can make informed decisions about your path going forward.
I`m glad you got into to an opthie - even if you did delay on it. (Imagine you`ve just been whacked on the shoulder.)
Warm hugs,
