well just in from the royal...again.
been a turn in the books today.
I went blind for 5 mins last weds night (12th sept) but was really busy so trailed off to my drs on fri. he changed me from Naproxen to diclofenic and told me to go to st pauls straight away. (14th Sept)
When i went they did pressure tests and looked into my eyes. they gave me an app for today 21st sept.
Monday 24th i had another appointment with the cardiology dept. he sed my heart has periods of racing and then slowing down. he suggested beta blockers but didnt feel they were neccessary as it wasnt interfering with me in any way. i declined the beta blockers and he discharged me.
went to the hosp at 8.30 am this morning and left at 4.50pm
I was in the eye hospital. and they did a floroscin test- dye into the blood look at the blood vessels. the blood vessels behind my eyes are continuously leaking and bursting. he asked symptoms of when i lost my vision and rushed me round to the acute medical assess turns out i had a TIA. (mini stroke).
the optition ordered blood tests for AS the HLA B27 (so finally 14 weeks later iv had the blood test! and also Bechets disease.
He rang the Rhuemy that had seen me and spoke to him, rang the ward i had been on, the cardiologist and had them all on a conference call!!!!!
took an Optitian.
i was rushed through for vascular tests. the head Rhuematologist at the royal couldnt apologise enough and is seeing me thurs which is his nearest available appointment and will be handling my care from then on. i will have my bloods by then also.
i am also to go back to the optitian 3 monthly.
iv been given 300mg a day asprin.
50mg a day prednisolone
the 50 mg diclofenic
40 mg omeprazole
10mg ametripteline
the TIA team are seeing me on a monthly basis for the first 6 months. theyv also ordered mri scans to see if any further damage... which ironically my bf keeps saying iv gone really scatty recently, havent remembered conversations and keep slurring my words randomly.
so fingers crossed im finally getting there!!!
i only went coz of my eye too as it was hurting and had obv lost vision.
turn in the books. hopefully i get some real solid information.
