So very sorry to hear how much pain you are in and how little help you've gotten so far.
It took me a long time to get a dx, but i haven't been as acute as you have been for so long: really acute for just a short time with tolerable times in between.
can you take a relative with you who has been dx'ed with AS and has similar symptoms? that might help.
i live in the U.S. and for me, i had to fly to another city in another state, spend my own money, to finally get my dx. then came back here with that doctor's letter and finally got into a good practice.
finally i'm doing much better between flares. but still i flare every few months, then i take methylprednisone for 6 days.
you can see what the doctors have me doing below my name.
stick around here and you'll find all kinds of advice to help you advocate and navigate for yourself better.
welcome
