thanks so much id copied and pasted them into word and will make it more readable for the rhuematologist lol.

the dr i saw today at the disease clinic asked similar questions tbh and said she will be sending them off to the report, esp about my eyes and mouth she kept coming back to it, and eyeing up my psoriosis.

fingers crossed im finally getting somewere.

had my first proper examination today (physical wise) with tons of questions, she read through all the literature i handed her and my own notes and pain diary and has completed a report for the rhuemy. shes done loads more autoimmune related bloods today and those results will be sent over.

im also under a cardiologist now as my 24 hr tape showed some changes on the ecg to my heart and that. so apt it dances to its own beat lol. fits with my personality.

she suspects it was rhuematic fever and its kicked off my heart problems and AS/Behets disease. shes torn between the two.

hopefully by the end of sept il have got sumwer!

thanks guys x


* Constant pain in lower back and hips since childhood/early teens
* Joint pain started June 2012- mirroring polyarthritis
* reg chest pain since 11yrs old. knife stabbing like sensations.
* Jaw and hips click and reg seize (cant open jaw- cnt move hip;feels dislocated at times-have confirmed fusion around sacriliac/illiac joints ref to physio 2010)
* Anaemia- constant- take spa tone
...............................................

HISTORY
Stong family link to AS:8 relatives in total