thanks cemc il contact pals first thing in the morning.
im still keeping my pain diary etc as the new rhuemy may want it, iv also got my fam hist written down and previous tests/med hist.
fingers crossed i get taken more seriously in future.
god knows how my relatives cope with this pain, my grandads suffered quite a lot, he seems a lot better since he been taken something called serrapeptase. a new lease of life he says. my aunty thelma well god love her is all i can say think thats why im more scared, she came to visit and was telling me 'ooo you remind me of how i was at your age' i was secretly thinking to me 'hope to god you dont remind me of me at your age'. its really worried me. she has full spinal fusion, with the hunch at the top, and has a bracket/brace thing supporting her head in place as her neck cant do it.
Im going to try the diet as well, help myself as much as poss. but im worried if i go with non of the symptoms the rhuemy wont be able to get a full picture.
just trying to keep my pain meds topped up as much as poss really tbh. i tried working tonight, sick of pinching money off my nan to feed the kiddies and was only a 40 min job for £35 - a weeks shop really if done sensibly.
i was in agony all my arms back and hips and totally wiped out after it. but least i can feed them myself now lol. my wrists are totally swollen (but again not red) its like a solid swelling, hard to explain really.)its all in my hands and feet tonight too which iv not had before its been main joints such as knees, ankles, hips, elbows, shoulders and wrists. fingers crossed this flare comes to an end, i read somewere they last around 3 months? well iv had it since the end of june. i can cope just about with the back and hip pain iv always had, im getting more accustomed to the joint pain, but coz it moves around each joint its a bit harder tbh, whereas my back and hip pains always there constant so u can adjust to the levels, now n again it increases and i have to up my meds but then i get used to it again and so on like a cycle.
anyway my ramblings are over.
thanks so much everyone for being so understanding and supportive.
i felt so alone and emotional tbh. my grandads been great i have to say he has. my bf has been brill even helping me with the children (only been together 8 months and hes havn to do dirty nappies and put babies to bed lol) dedication for ya way to know uv found a gudun i guess. but my dads basically treating me like im putting it on and being a hypercondriact. coz its not something they can physically see they cant really relate to it. all i get from my mum is (as supportive as she can me) like its a competition well im having surg on my knee in sept, yes my knees sore liz, why dont you just start getting on with things now, were all in pain liz iv had this cough several months now, hmmm maybe i have what you have (mums one of them got everything if someone else does and is quite competitive lol) i keep having to remind her its not a competition we can both be ill. but its the way she doesnt understand my fatigue and my feaer of the chill cabinets in supermarkets if i go near them the pain in my joints skyrockets!
anyway i am officially going to stop my rant and get to bed lol. really sorry but i am really greatful for all your help and support everyone.
thanks so so much!
