Thanks. And yes dry eyes and digestive issues. Though I am unsure about the benefit of mentioning the digestive stuff since IBS + fibro would be classic in their minds.

I also had a dx of reactive arthritis in 1996 soon after my SI symptoms started (I thought the SI stuff was due to pregnancy so never saw the doc about it). I had a livid rash all over my legs and then flared up with painful swollen joints, especially my hands. That got better after a few weeks but still could have been some kind of initial flare of inflammatory arthritis I would think.

I don't have standard typical AS symptoms so maybe it is undiff and the gene test would come back neg. Diagnosis is frustrating- it's like with gluten, if you don't have classic advanced celiac you get told you're fine.

But I also very much don't have standard fibro symptoms either. I don't have muscle issues at all except when my neck and shoulders are very bad, the muscles there tend to tighten up. But that's all.


Symptomatic since 1996
Gluten free since 2008
Paleo since 2010
NSD since 2011