I didnt mean to construe things the way I did, sorry. I can be so subjective when it come to disposition. The tape measure measurements really means nothing. I just wanted to show how important getting help is, especially early on.

The gist of what I meant is 15 years ago I was "normal". Then my trouble started and having gone on for all that time with no help AS has disfigured and crippled me. I was 5'11" 175lbs solid now Im 5'7" 158lbs mostly soft.

Its important that you use ALL avenues to get help and dont give up. When things in your body deteriorate there is no getting it back. You can be in agony for years with AS before anything shows up. I hope it doesnt take you the inability to breathe easily or the fact that you have no SI joints left on Xrays to get you help. By then its to late. Dont be discouraged by being jerked around. Only you know how you feel. There are far more wise people here about AS than I. Im sorry if I confused or mislead anyone. I did not mean to.