Exactly! You said it so well, Sue. I don't want to do it out of anger (ok ya, maybe there's a part of me that would like to, but it wouldn't really accomplish much in the grand scheme of things).
I just want (hope) that the ER doc would take it as a learning experience, because it would kill me to know that he'd react the same way with the next patient with similar symptoms.
And I'd hope that my second GP would understand not to give up on a patient or tell them to quit digging for a single reason for all their problems.
I'm still struggling on what I'd say to my first GP I saw about this. The last time I saw him, he yelled at me, "THERE IS NOTHING WRONG WITH YOU". I left in tears and never went back.
Guess I just want something good to come of all this. And maybe prevent someone else from having to deal with the same. Maybe I'm just a dreamer. lol La vie en rose and all that. Lots of time to think about how to handle this.
About slow burning carbs - I'm learning that the neat thing is, they're all starchy.
This porphyria/NSD thing isn't terribly compatible, so I think I'm going to have to learn to walk a very fine line between the two. There is a nutritionist at my clinic, so I think I should probably see her. Then again, some folks here on the diet forums are probably even more knowledgeable and wouldn't question why I want to stick to low starch.
Thanks Sue. I always really appreciate your replies. Hi to Mookie.
