Oh Megan OMG OMG THANK GOODNESS that you know what it is
finally!!!
It sounds like another Not fun diagnosis but definitely better to know what you're battling and who the opponent is. I am so incredibly relieved that you finally have an actual answer but now worried too as I have just been reading the eMedicine article
There is a long list of meds that are suspected unsafe and/or associated with acute attacks and a link to a longer more comprehensive list too. And it says fasting is a trigger too.
I am sure you're reading up a storm and I am full of new hope for you that you can find a seriously helpful treatment strategy to put this dx in check and have you finally feeling better soon!!!
It kills me you had to go this long without a dx. Every single one of us knew it was
not in your head.
Wow Megan I am so emotional over here, just wishing with all my heart that you'll soon have the chance to get this managed and get to feeling well again!
Huge warm (((hugs)))
mig
