Yes, I am relieved to have a diagnosis - sorry if I didn't make that clear. Trust me. Very, very relieved.
I have a GP who diagnosed me... not really sure if I want to go back to some of my other docs. I have an apt with my GI doc on monday, and it will take everything in me to stay calm when I explain that her rudeness and unacceptable bedside manner last time were completely uncalled for (not to mention I came out of my endoscopy anaethesia on a stretcher in a very busy public hallway, by the bathroom doors, wearing nothing but a teeny hospital gown, and having random people staring at me?!? And then when Glen and I wanted to discuss the results of the endoscopy after the doc showed up, she said no because it wasn't private enough?!? What the?)
My neurologist I'm sure will be surprised. We've already been through all the neuropathy treatments available to me, so I think it'll probably be a case of better pain management. I think perhaps going to oxycontin rather than plain morphine would be a good idea.
Also a hematologist will probably have to make the call on the exact kind of porphyria have. I think. Not sure. Much to discuss with my GP next week.
Very happy to now be able to move on though.
