Hello Valerie

It' so nice to meet you.

I wonder why it is that if you have a broken bone with a cast on everyone falls over themselves to help you and sympathise but with a condition that you can't see - people don't always give you the "benefit of the doubt" so to speak. I've never broken a bone - but I'll bet it's not much of a competitor with AS when it gets going.

I find it so disappointing and upsetting when doctors don't give the help and advice that we rely on them to give us.
I hope you, as a family, can get seen by someone who will get stuck into helping your niece. It's the least you deserve.

Very best of luck to you and your family with this.

KickAS and help others do the same!