i like a good documentary, will have to keep my eyes out for this one, let us know when it is available......
when people ask me how i'm doing, i usually say OK. i always thought that was an OK response. but its amazing how many people ask, "just OK?" then i either have to lie, which i will not do, or explain, or say, "yeh, just OK." i tend to give the third response thinking, "you really don't want to push me on this, because then i'll tell you a lot more than you bargained for." usually, people won't push when i say, "yeh, just OK." i think the social norm would be to lie on the second chance and say, "i'm fine." my husband used to say, "i'm alive" without any flack. i should try that or something else equally clever. the "i'm ok" definitely is not the way to go.
dow, i hope you can continue your work. i can see some of my work slipping; takes too long to get my papers written up for publication, may need to start foregoing meetings, as this past year, i went to two meetings where in June i was miserable walking around and in august i was either sitting in the meeting with an ice pack on either my SI, hamstring tendons, or feet, or laid up in the hotel room. it seems almost pointless to go under those conditions.
and that disconnect between how we look and how we feel. i have a book, "sick and tired of feeling sick and tired; living with invisible chronic illness". it really helped me to understand a lot of what i was feeling early on. a lot of times, when i look just fine but feel really awful, i often think of that SNL quote, "its better to look good than to feel good." not saying that i agree, just saying i find that whole thing rather amusing. i don't care so much what most people think, and i'm really lucky my husband totally gets it, but it has made it rather difficult with doctors.
sue
