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Nov 21st, 2025
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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Jan 2009
Posts: 71
Active_Member
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OP
Active_Member
Joined: Jan 2009
Posts: 71 |
So my most recent conversation with my rheumy is that her worries about unmasking underlying IBD are now relieved given new data that don't show that as having happened.
For me, my big question is: when is it going to get approval? And once that happens, when can I get it? I'm worried about joint damage in my fingers. I kinda need my hands.
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Joined: Sep 2001
Posts: 1,661
Platinum_AS_Kicker
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Platinum_AS_Kicker
Joined: Sep 2001
Posts: 1,661 |
 This bunny Kicks AS !
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Joined: Jan 2009
Posts: 71
Active_Member
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OP
Active_Member
Joined: Jan 2009
Posts: 71 |
Well, another year has gone by since secukinumab first was approved for psoriasis. Two studies now have validated long-term remissions in both PsA and AS. I don't know when we'll see approval.
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
Awesome. If Cimzia stops working, this will likely be next for me. Unless I go back to Enbrel, which I took a few years ago (stopped because it seemed to stop working, but in retrospect it might have been a bad flare instead).
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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Joined: Jan 2009
Posts: 71
Active_Member
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OP
Active_Member
Joined: Jan 2009
Posts: 71 |
Just approved in the EU last week. Still not in the US.
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Joined: Jan 2009
Posts: 71
Active_Member
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OP
Active_Member
Joined: Jan 2009
Posts: 71 |
Still no word. Now I have a bad arthritis in my right foot. I had to call out of work for a day. Difficult to walk. Rheumy offered opiate analgesics. I flatly refuse to go down that road. Not now, not ever.
Come on, FDA. People are suffering. Stop dragging your feet!
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Joined: Jul 2012
Posts: 87
Apprentice_AS_Kicker
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Apprentice_AS_Kicker
Joined: Jul 2012
Posts: 87 |
Last edited by jeffo; 01/18/16 01:21 PM.
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Joined: Jan 2009
Posts: 71
Active_Member
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OP
Active_Member
Joined: Jan 2009
Posts: 71 |
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Joined: Oct 2014
Posts: 47
Member
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Member
Joined: Oct 2014
Posts: 47 |
Im in the UK. Have asked for this only yesterday. As not yet NICE approved, I have been told an individual funding request will have to be submitted via my NHS hospital. I was told this could take three months or more. Anyone know more about this process? I can imagine due to the cost I will be fobbed off.
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