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Joined: Dec 2013
Posts: 169
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First_Degree_AS_Kicker
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First_Degree_AS_Kicker
C
Joined: Dec 2013
Posts: 169
Thanks for sharing, Sue.

Wishing you continued success!

Joined: Sep 2004
Posts: 433
Likes: 1
S
Black_Belt_AS_Kicker
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S
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Posts: 433
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So glad to hear this great news Sue.

Joined: Jan 2008
Posts: 21,346
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Sue22 Offline OP
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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thanks coattails smile

thanks stormy smile

still going strong smile



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Jan 2009
Posts: 4,501
Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501
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Glad to hear things are still working for you with Humira. laugh

Hope the weekly dose keeps you going without flaring badly. Suppose that it is true--no food is worth feeling badly. Except maybe chocolate. Hope the school year goes well for you. Yea, Teachers!!!


DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
Joined: Jan 2008
Posts: 21,346
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Sue22 Offline OP
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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thanks rumble smile

now that its september, trying to go back to 10 days....did yesterday...but I think my sweet spot might be 9 days...i felt pretty good through day 9, felt petty crappy yesterday (day 10) and got the shot last night. today I felt better.

Too, interestingly, i usually hit a rough spot at about day four and then its like my body figures it out and i'm better for the next 4 or 5 days. Kinda like in running where you hit a wall at one mile and then are good again for the next few miles...when I used to run...like 30 years ago smile



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Sep 2015
Posts: 4
New_Member
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New_Member
Joined: Sep 2015
Posts: 4
Hi, I'm tigerlady. I'm 39,diagnosed with inflammatory arthritis aka ankylosing spondylitis about 3 months ago. I'm currently on Humira 40mg every other week. I also have anterior uveitis that was diagnosed about 3 years ago. Doing well with Humira, except still having flare ups of pain and joint swelling. Just wondered if anyone had any advise that might help my case. I'm really at my wits end. Thanks.


Tkwilliams
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Sue22 Offline OP
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
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Posts: 21,346
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you'll get more of a response if you start a new thread to introduce yourself and ask the same questions there.

though i felt improvement from humira right away, it takes a few years to get to this place. started humira june 2013. aug 2013, I flared. aug 2014, I flared. aug 2015, I didn't flare. that's 2.5 years later.

give it time. but too, in the meantime, use the other treatments you were already using to get you through: nsaids, ice and heat, PT or chiro, ultrasound, steroids as needed, etc.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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