Kickas.org Forums Treatments, Drugs and Alternatives NSD and diet-related; UspA and Low-Starch Diet

Hello Everybody!

My name is Fabian and I'm from Argentina.
I would like to thank to KA for letting me tell you about myself.

I have an USpA (wich probably turns to a psorisis one) since 2001. I have the HLA B27 gene.
This thing is mainly attacking my knees, and little bit my sacroiliitis.
I started using Humira last Nobember, wicht worked quite well until July, when my elbows got affected. I stopped using Humira in August. In a few days I will be using Infliximab.

Apart from these medicine I started using the Low-Starch Diet 3 weeks ago, so far I can not notice any improvement. But I have faith !! and I guess I need some more time to see if works for me.


My question is, Does anybody have experience with this desease and the Low-Starch Diet?


sorry if my English is not so good!!

The Best for everybody!!!
Fabi

Hello Fabi,

I'm sorry that the Humira stopped working for you. I am curious as to what you meant with your elbows getting affected. I've been on Humira for over 6 months now and I've noticed my elbows just unilaterally start to ached and throb. I cannot do anything at that point but leave them straight and put up with the pain. It may last an hour or two-during which I'm pretty useless and then they will be fine for a week or so.

regarding the LSD, I eat a low carb diet which works better for me than testing everything for starches. We are all different but I do know it takes a while for the body to realize that it is not being poisoned anymore and to start healing itself. Just like your symptoms probably came on gradually- the feeling better does, also. One day, you just happen to realize that you're standing taller and feeling better than you had for a while. At least, that is my experience.

And your English is fine

Hi Pezami!

thanks for telling me about your experience!
My elbows started swelling and hurting just two months ago.
My Doctor said is because of the USpA. She thinks my body made antibodies against Humira, that's why I will be trying Infliximab since next Thursday.

The Best
Fabi

Hola Fabi,

I see you posted here now, I moved your post to diet forum as more people that follow the diet look in this forum.

Veo que tenés HLA B27.. tambien tenés huesos fusionado? Puede ser tengas anklyosing spondylitis... muchos veces los doctors ponen diagnóstico de USpA cuando no saben que tienen los pacientes o antes los pacientes tienen huesos fusionado. Pero hace mucho tiempo que tenés artritis, entonces si tengas anklyosing spondylitis me parece que tengas un poco de hueso fusionados. Tenés dolor de la espalda tambíen?

Por suerte... me parece la dieta es mas facil aca en Argentina. En EEUU mucho de la comida es procesado.

Espero que mas personas contestarte.

Felicitaciones... Estudiantes ganó con Velez hoy.

Saludos,

Tim

Hi Fabi,

I've got USpA with minor psoriasis and have stuck to a NSD since 2007 with great success. Even so, there have be a number of times where I've had to tighten my diet further, or having slackened off and eaten to many carbs have developed problems in some peripheral joints. In relation to knees, my problems would start with minor pain, then progress to supra-patellar bursitis and because the suprapatellar bursa communicates with the knee joint proper then eventually the knee joint becomes inflamed and swollen. This is very destructive mentally and physically and at that point no amount of fasting or NSD dieting can turn it around, at least for me. I am an advocate of targeted injections of cortisone and on three occasions have had a more powerful version called Kenacort injected into one or other of my knees - to great effect.
I would definitely go with NSD if I were you - even if it is a bit socially isolating.
In Australia I am not considered bad enough to qualify for a biologic - we have a national Medicare system and a Pharmaceutical Benefits scheme that means only a Rheumatologist can prescribe a biologic provided the patient meets a strict set of symptom guidelines. An individual could pay for the drug themselves and by pass Medicare but would require $25,000 per year (about half the average annual wage).

I'm undifferentiated spondy and rely on diet. It has not put me in remission but I can't function unless I stick to it. And I hope it will slow the disease progression so I never get a more specific diagnosis. My rheumy thinks early AS but I have skin issues (that seem to flare when I stray a little from diet) so she has also mentioned PsA. MaryCay

Estudiantes gano si! gracias!

solo tengo algunos dolores de cintura. Creo que el diagnostico esta bien

Thanks David and MaryCay!!

I will try the NSD, even if I get better using Infliximab.
Last Monday I had an appointment with an homeopath. We'll see

have you tried natural antibiotics? as for example garlic?

Hi Fabi,

I'm lucky in that I responded almost immediately to a NSD so haven't had any need to try antibiotics or natural foods with antibiotic effects. I don't though tolerate fresh garlic (which is probably starchy?) or even onions - especially not fried onions.

Good luck with the diet.

Regards David.

Hi David, you are right, garlic is starchy

The Best
fabi