Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Rheumy in Greensboro/High Point NC?

Hello, Kickers!!

Yes, I am alive! It has been a while since I have posted but KA has never been far from my thoughts and will always be in my heart.

My 23 yr old daughter was diagnosed with AS today. She has a case of iritis so acute that her iris has attached to her retina. We are hoping that steroid drops will detach the iris but we are not sure of the prognosis.

She needs a rheumatologist in the Greensboro/High Point area of North Carolina. Does anyone have a rheumy in the area? I would truly appreciate any suggestions.

I am heartbroken. Although my brain says that I am not responsible, my heart feels so guilty. I just want to kiss it and make it go away like I did when she was a baby. I never truly thought that I would have to help my own child manage life with AS. I had hoped that their dad's genes would prevail.

Thanks for letting me vent!
Holly

Holly - Great to see you here after such a loooong time - have missed you - and your photography - but...what a sad event to have you posting. Am so sorry to learn that AS has affected your daughter. Positive thoughts and prayers that she finds a rheumy in her area and an ophtho who will manage the iritis problems. (((HUGS))) and prayers my dear

Molly C

Hi, Holly! I'm so sorry about your daughter also having AS. I can recommend a rheumy in the Durham/Chapel Hill area, maybe an hour drive away. I actually drive 4 hours to see her. She really cares and listens well. Every 6-8 weeks, she schedules 40 minutes for my appointments, perhaps because she knows how far away I live.

When my case became more difficult, she set up an appointment for me with a specialist at Duke, to get another opinion on my treatment options. When my disease became steadily severe and I could no longer handle even a part-time job, she was very helpful and supportive when I had to apply for disability.

Can your daughter be seen by a specialist at the Duke Eye Center in Durham? They handle very difficult cases, although it can take months to get an appointment.

PM me if you would like her name. I wish you and your daughter the very best!

Hello Holly,

Great surprise to see you posting, wish it were under better circumstances.

Cannot help with doctor unfortunately, best to your daughter that all turns out well.

Tim

I am very sorry for you. I will pray for your daughter and for you too. I hope her eye heals well without any damage, take care.

{{{MOLLY}}}}

I have missed you too!!

Great news today from Chelsea! Her retina and iris have parted ways and the optho is positive that there will be no long term affects!!

I hope you are doing well my friend!! Huge hugs and Happy Holidays!

Sundance,

THANK YOU!! I saw my rheumy today and he is asking a friend of his at Duke so maybe it is the same rheumy?

We received good news on Chelsea's eye today. It is healing well and optho doesn't think there will be permanent damage.

I would be greatly appreciative if you would PM your rheumy's name. Thanks so much!!

Happy Holidays!
Holly

TIM!!!!

How are you my friend? I hope life is wonderful for you!!! I have often wondered how you are!!

We need to catch up!!

Big Bama Hugs!!!!
Holly

Thank you, ValsMum!!

It seems your prayers were heard. Chelsea's eye is doing great and no permanent damage is anticipated, as of today!!

I really appreciate your prayers!!! Happy Holiddays!
Holly

good news! hope you can get onto really excellent long term follow up for her.