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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
Does everyone get this ridiculous cascade of issues after being Dx'd w/ spondylitis? I am out of sorts!  My eye pain, vertigo, ear ringing, weak right leg deal has turned into 2 MRIs. One brain, one lower back... AND a trip to a neurologist.  What gives? I must say that I am over Dr visits, yet the fun continues!  While swimming yesterday I admit to thinking that at least if it's a brain tumor I'll be able to get a doctor's note out of my final math class  My Dr suspects MS, and this idea creates a good amount of rage - which I'm pretty sure is toxic. Ok, that's it! I'm sending myself to the corner to meditate... Well to the couch anyway  BRB
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Erica, you sure do have a lot going on right now. I hate to say it, but autoimmune diseases do tend, in some of us anyway, to happen in clusters. That said, I truly hope that what you are experiencing is a by-product of your AS. I think you know what I mean.
Have you seen and ophtalmologist for the eye pain, by the way? We are subject to iritis, which I describe as arthritis of the eye, and it is horribly painful. I'm sure your doctors have already looked into this, but thought I'd ask. Vertigo and tenitis (ear ringing) could be fibro related, but might also have something to do with neck involvement. Weak right leg could be related to lower back/sciatic issues. I'm just trying to come up with something other than MS, is all.
If it is all AS related, I fear it will not save you from the math exam. It's good that you're swimming, by the way. One of the best things for us!!
Hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Nov 2003
Posts: 8,190
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2003
Posts: 8,190 |
Erica,
Sorry you are going thru all of this, I am feeling this way a bit myslef lately.
Just know your not alone...may seem like it at times but that's why we are here.
Hugs,
Lisa
Speak kindly, Live simply, Care deeply, Love generously, and BLAH, HA, HA, LOUDLY! every chance you get.
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Joined: Sep 2008
Posts: 955
Superior_AS_Kicker
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Superior_AS_Kicker
Joined: Sep 2008
Posts: 955 |
 When it doesn't rain it pours, eh? Sending positive vibes your way... and keeping fingers and toes crossed for you.
"Traveler, there is no road, you make your path as you walk." - Antonio Machado
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
Thanks for the support! I went to the eye doctor yesterday, which was who sent me to my doctor. He didn't see inflamation, though the vertigo w eye movement evidently means a whole different thing than vertigo w head movement... didn't know that fibromyalgia comes w dizzy/ringing, but at the rate I'm going, surely I'll have fibromyalgia by the end of the week. {visualize bemused sarcastic expression here}
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
Thank you! I definitely feel held up in prayer and good vibes here:) And really, what is a diagnosis? Just an explanation for our symptoms, right? Validation that we aren't hypochondriacs! 
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
Thank you! I adore positive vibes! 
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Sep 2009
Posts: 1,236
Copper_AS_Kicker
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Copper_AS_Kicker
Joined: Sep 2009
Posts: 1,236 |
Just to clarify, when you say eye doctor, you mean an ophthalmologist and not an optometrist, right? Because an optometrist can't diagnose iritis/uveitis.
Micki
Mom to 9
Dx'ed Ocular Herpes, Sept. '08
Dx'ed AS May '09, suffering on and off since 1979
Dx'ed Non-Hodgkins Lymphoma May '08, relapse Oct '11
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Joined: Jun 2010
Posts: 3,865
Royal_AS_kicker
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OP
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865 |
No! I went to an optometrist, and then my doctor. Oddly today my eye feels good, and my pain level is only about 1-2. Still dizzy & nauseous. Calling the opthamology clinic now. Thanks for clarifying! I really am flailing around in the dark still 
ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009
Movin' it so I don't lose it!
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Joined: Dec 2003
Posts: 725
Decorated_AS_Kicker
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Decorated_AS_Kicker
Joined: Dec 2003
Posts: 725 |
Hi,
I hope you are feeling better today. I hope that this all settles and goes away without a new diagnosis. Thinking of you.
Debra
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