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Joined: Nov 2009
Posts: 39
Member
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OP
Member
Joined: Nov 2009
Posts: 39 |
Cystoid Macular Edema. Have you had it? How did you fair?
I have been fighting a long bout of Iriris and now have CME. My vision in my left eye has gone from 20:16 (with glasses) to 20:100 (same prescription) in 4 months. I am unclear what to expect in the long term.
Any one have any experiences they would be willing to share?
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Joined: Nov 2003
Posts: 8,190
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2003
Posts: 8,190 |
Im sorry this has happened and so far i haven't dealt with anything like this although I have had Iritis numerous times.
Just wanted you to know you have support.
Lisa
Speak kindly, Live simply, Care deeply, Love generously, and BLAH, HA, HA, LOUDLY! every chance you get.
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Joined: Feb 2010
Posts: 1,127
Steel_AS_Kicker
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Steel_AS_Kicker
Joined: Feb 2010
Posts: 1,127 |
I'm sorry to hear this.
I have no idea what that is that you have, I have iritis and atm my left eye is killing me and feels like it will pop out as it feels so swollen. Even with my glasses I can't realy see out of it very well and my pterygiums are giving me hell too.
May I ask what Cystoid Macular Edema is?
Hope it feels better soon for you.
Take care
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Joined: Nov 2009
Posts: 39
Member
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OP
Member
Joined: Nov 2009
Posts: 39 |
I'm sorry to hear this.
May I ask what Cystoid Macular Edema is?
Hope it feels better soon for you.
Take care All I know about it is what I have read online. I guess wikipedia offers as good an explanation as any: http://en.wikipedia.org/wiki/Cystoid_macular_edemaI am hoping that my vision can be restored. Doctors have so far been noncommittal on an outcome which is why I'm posting here.
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Hollingworth - one of my first tasks today was to check ut that N Acetylcarnosine. Here ya go :-
Cystoid macular edema - N Acetylcarnosine
Web ResultsThe Science and Marketing of Dietary Supplements -
Elsevier
... niacin (cystoid macular edema in dosing >3.5 g daily, blurred vision), ... Outside of the US, N-acetylcarnosine eye drops are a leading seller worldwide ...
linkinghub.elsevier.com/retrieve/pii/S0002939405003065 - Similar
Cure For Glaucoma: Intraocular Pressure in Steroid Injections
Nov 22, 2009 ... the improved acuity was secondary to reduction in cystoid macular edema. ... Wear anti glare glasses · N-Acetyl-Carnosine Eye Drops and ...
cure4glaucoma.blogspot.com/2009/11/intraocular-pressu... - Similar
Cure For Glaucoma: November 2009
Also, check for clinically significant macular edema (CSME). .... Wear anti glare glasses · N-Acetyl-Carnosine Eye Drops and Cataract Surgery? ...
cure4glaucoma.blogspot.com/2009_11_01_archive.... - Similar
[ More results from cure4glaucoma.blogspot.com ]
Full Article - Journals on the Web
Innovative Vision Products has developed N-acetylcarnosine, ..... Wand, M., Gaudio, A.R. Cystoid macular edema associated with ocular hypotensive lipids. ...
journals.prous.com/journals/servlet/xmlxsl/pk_journals.xml... - Similar
----------------------##
Looks like you could use these drops. Am going out shortly to see (!) IF I can locate em for me (glaucoma) in this wee town... Otherwise I'll get em from the UK.
Molly C (France)
Keeping on Keeping on
MollyC1i - Riding OutAS
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
NOT a hope in hell... NO. Not in France. Sigh. OK. Will have to send out for em. What a bore.
MollyC1i - Riding OutAS
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Joined: Feb 2009
Posts: 213
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Feb 2009
Posts: 213 |
Hi Hollingsworth, many uveitis experiences to share, but no CME on my side... sorry to hear you've now developed that. Are you being treated by a uveitis specialist? If you look up the MERSI website in Cambridge, MA, they have a list of specially trained uveitis specialists (both in the US, and internationally - I'm not sure where you are). Any of these specialists would most likely be your best bet to get you out of this flare and best deal with the CME.
Good luck!!
-Anke
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Joined: Nov 2009
Posts: 39
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OP
Member
Joined: Nov 2009
Posts: 39 |
Hi Hollingsworth, many uveitis experiences to share, but no CME on my side... sorry to hear you've now developed that. Are you being treated by a uveitis specialist? If you look up the MERSI website in Cambridge, MA, they have a list of specially trained uveitis specialists (both in the US, and internationally - I'm not sure where you are). Any of these specialists would most likely be your best bet to get you out of this flare and best deal with the CME.
Good luck!!
-Anke I am not currently seeing an uveitis specialist. Unfortunately the MERSI web site has no uveitis specialists listed for my state. Closest one looks like a 12 hour drive.
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Hi Hollingworth, I'm sorry to hear you're dealing with this. Sounds pretty frightening. I have had too many bouts of iritis, but no CME, so no help there. Just wanted to add my shoulder to the load.
Hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Hollingworth, thank you for info on this - Have *placed my order* for. Stuff is V. *expensive! Phew. Just think, I could get the vile meds for NOWT, just suffer the side effects of and prob not do much good into the bargain. This way, a cheapo supplement that I *have to pay for, and prob will hold the problem in check with NO side effects! Quelle choise, eh?  Flippin eck -  Molly C (France) Keeeping on Keeping on (as she dioes...grimly!)
MollyC1i - Riding OutAS
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