Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group what time of the day is worst.. pain wise?

Michele

hehe it is nice to know that the literature is wrong.. we should re-write it!!! :P

Sonja

rumble.

I really hope it works for you like it has for me. I can bend again (im a strange case though) I have hypermobility and could do everything exept touch the floor !!! i was 60cm from in when i started SSZ now im only 10-15!!! worked wonders... there still is pain.. but im confident the SSZ is working for me,

Sonja

Kevin

My rheumy is good.. hes helpful and was very patient with the language barrier in the first few apts. however he works in a public hospital.. and here that equals hell! for example the docs give you a DATE for the apts.. eg monday 12th and you go ... the earlier you get there the earlier you will be seen.. you form like a line! hehe strange.

ooooh i wish i didnt have morning stiffness.. would make my life easier.. hmmm while im wishing for miracles... i wish i didnt have spondy!! :P

Sonja

Hi Sonja
Im glad you get on with your rheumy and im not saying he is bad.But a lot of Doctors dont listen to there patients.As mine says I know a lot more than he does about pain because Ive got it so treats me accordingly.
Kevin

kevin

im glad your doc listens to you! and yeah i get on with mine but sometimes he just doesnt listen!!i say im in pain and he tells me to be patient!! Sadly no matter how trained someone is they still cant understand exactly what we're going through. as my bfs little sis (juvy arthritis) said "people dont understand its not that there is a position or an excersize to make us feel better.. its just always there!!!"

Sonja

Sonja
Your bfs little sister got it right, My Mum sufferd with severe ostio arthritis and RA and she always said because they cant see it they dont understand it.He should be giving you some pain killers.
Kevin

he does.. arcoxia and paracetamol.. i have a visa problem here.. im technically a tourist and therefore have no rights to insurance or anything. and yes she is right. shes hankfully in remission at the moment.

Sonja

arcoxia ok but I wouldnt think paracetamol is strong enough
wouldnt (dosent)have any affect on me.Ask if you can have something stronger.
Kevin

thanks for the advice.. will talk to him next time i see him

Thanks Kevin and Sonja....
I was diagnosed 6 months ago, judging by the damage and fusing, pain history, rheumy reckons was probably active for 10 years but constantly misdiagnosed. So it was kind of a relief to know there was something going on, the last 5 years have been pain hell, just kept it all bottled up inside til had complete flare physical exhaustion meltdown. That was a year ago. I haven't worked or done much apart from work all this stuff since then. I recently got on disability pension (australia) and go on Enbrel in the next few weeks, so hopefully things will pick up and i can slowly go back to work/ study/ life soonish. haven't had any stomach problems with 6 months of nsaids, always have them with food, but they don't really do much... just take a layer of pain off and reveal another!!! Anyways... i'm not much of a forum poster (though this place seems friendly and drama free) but i'll be around and let you guys know how things go..... cheers Rob