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Joined: Sep 2001
Posts: 439
Black_Belt_AS_Kicker
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OP
Black_Belt_AS_Kicker
Joined: Sep 2001
Posts: 439 |
Enbrel is now lasting only 1-1.5 days out of 3.5, so I've been getting stiffer--last visit to rheumy showed less chest expansion--apparently, it's now down to 1.mumble centimeters 
Enbrel still works really well, just not for as long.
Anyway, have any of you started hearing wooshing heart sounds as you've gotten stiffer?
Paul
Last edited by Paul_in_MD; 02/07/06 09:44 PM.
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Joined: Aug 2003
Posts: 2,717
ironchef
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ironchef
Joined: Aug 2003
Posts: 2,717 |
paul, aloha i am on enbrel too...my rheumy is strong at questioning my status when i have my yearly review with him. he's happy with my response to the enbrel ( he wasn't happy that i ran out for 21 days and my neck got stiff again); but he asks that i 'defend' the efficacy of my enbrel program. he advised me that folks on biologicals sometimes develop antibodies to their meds and the meds lose their strength/durability/mojo...he noted that enbrel, remicade and humira all are similar but built differently... he already warned me that should enbrel start to let me down he's ready to go to remicade right away, or humira if it's approved for as in time.(may be approved by now). i have a ringing in the ear, been there for 30+ years...no worse, no better...just there. loud noise caused the ringing but i'm sure nsaids didn't help. ps. someone (not sure who) is doing double doses of enbrel 2x 25's twice a week...now that's a lot of needles. all the best, good luck aB 
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Joined: Sep 2001
Posts: 439
Black_Belt_AS_Kicker
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OP
Black_Belt_AS_Kicker
Joined: Sep 2001
Posts: 439 |
> he advised me that folks on biologicals sometimes develop
> antibodies to their meds and the meds lose their
> strength/durability/mojo...
Okay, thanks...I'd *suspected* something like that...
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
my whoosing heart sounds (pulsating tinititis) was from the vioxx that i was taking for 3 years that was giving me low level edema. stopped the NSAID, heart beat disappeared.
sue
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Sep 2004
Posts: 258
Third_Degree_AS_Kicker
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Third_Degree_AS_Kicker
Joined: Sep 2004
Posts: 258 |
I have had embrel just about stop working for me after 2 years or so , then after being off it for a year I tried it again and it worked extremely well and that was 2 years ago and so far so good so who knows..??
You havent lived until you ride a wave .The best medication of all SURFING. 
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