Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Public Apology - I'm Sorry

Hi, Alan:

Thank You, for posting again and sharing some of your experiences. Although I agree with much of what you have described, having direct benefit from most of the list, I strongly disagree with finding a homeopathic doctor.

Fortunately, The Amazing Randi (and two independent teams of scientists), in defending his $1M prize, has totally disproven homeopathy, and he lectures on this topic for many hours after taking homeopathic sleeping pills--more than 5 bottles full (where two pills are recommended dosage). This stuff works not at all.

I know that you did a great deal of research on AS, but it is difficult to believe that you missed the starch/grains exclusion that is primary in fighting the condition; and at least five sources previously (Cayce-the 'father of holistic,' Campbell, Sinclair, LeTissier, and Ebringer) have recommended starch-restriction against AS/RS directly, with documented great results. It cannot be left out of any anti-AS regimen, whether natural or allopathic-centered.

Good luck to You,
John

Sir Alan,

Dude, you have to take in account the Human Response. Intent versus Impact. Was your intent honorable? Perhaps, but note the impact of your first post. I think I can safely say that many felt that the saleman was knocking on the door. Riots insued, floods, earthquakes, and dinosaurs. Perception is the key as my perception defines my reality. Everyone's perception is vastly different then the dude sitting next to them. So I walk into a large group with some really frustrated folks and say "Yo, I got something to help you all, just visit my site and check out my book." Ouch, that left a mark. So we can talk back and forth, and perhaps our intents are for the good but please consider the impact. Leaving a positive impact on people makes life worth it.

Thanks for the appology none the less.

Doug

May Pain Freeness be with you!!

On one hand Alan, apology accepted. On the other hand, the whole continued advertising, backhanded (and yes I said backhanded) apology and suggested cure is still rather...well snake-oil salesman.

Frankly, the whole "I had arthritis and it was so bad (hear the echo...how bad was it?)" still fails to take into consideration that:
A. There is more than one kind of arthritis...AS is not the same as psioratic
B. Arthritis in all its forms affect people differently, AS is definitely one that is not as stringent on what it does to a person.
C. Not all cures or treatments work the same way with everyone (hence the "CURE" title doesn't quite fit when applying it as a be all to end all.

And the thing that really throws me is what you listed is pretty much every holistic and herbal remedy that is known to mainstream healthnuts.
Enema
Juicing
Vitamins
Kinesologist

I'm not sure, I think I missed the crystals and reiki in there.

You've basically blended a mishmash of remedies and suggested remedies...a lot of which requires huge faith in it let alone use of herbal stuff, and called it a cure.

I'm glad it works for you, but its not demonstrated as working in a blind trial with others, and its a damn expensive way of testing a theory...which is what this comes down to.

Because all things considered Alan, and I know this may not be fun to hear...AS can (rarely) shut down all on its own...with no rhyme or reason...and all this herbal juicing enemas and so on may just be cooincidental with your AS burning out.

When you've got 5 or 6 people who are legitimate AS people who've tried it and come out cured...then you have something.

In the mean time its basically, congratulations on your lucky circumstance.

Dear Mr.Schlines,... Thank-you for making a re-newed effort to introduce your self and your beliefs. I cannot find fault in your attempts to earn a living off that which has become your life's work. I trust that you've been motivated by personal experience and good intentions. Unfortunately, your initial post illustrated a stark contrast to the natural expression of empathy and compassion we are fortunate enough to share and experience here at KickAS each and every day. I can honestly say that if you had entered in need of our support... you would have received more than you could've imagined.

I, personally, would find it very difficult to come across a huge group of people who are suffering through a similiar experience and not have an instant curiosity to get to know them and see if they have tried similiar approaches to defeat their condition. Especially if I had written a book, I'd be doubly curious to learn or verify if this same approach had proven successful with others. I must admit, your suggestion that I've neglected to do any research and take no "responsibility" for my own health, I find insulting.

I'm am sorry that you suffered for 2 1/2 yrs... any amount of suffering is too much. I've lived with AS for 22 years and wouldn't wish it on anyone. I suppose you'd say I'm still "imprisoned by a death sentence of incurable autoimmune arthritis." I am really happy that you've managed to escape the incurable! It is always hopeful news to learn of such a positive outcome, tho I suspect more likely with Reactive arthritis.

"And then the next four words that came out of his mouth were words that would change my life forever: “You Have Incurable Arthritis!”" No wonder you were left with a bad taste for medical practitioners Alan! My doc simply said, "You have AS" and gave me a pamphlet.

Best Regards,

mig

I've read your suggestions from your book.


I don't care if you want to apologise. Quit trying to sell your book here. HALF of the stuff you mention is common knowledge here at KickAS and I don't need to spend money on a book to tell me COMMON SENSE things like "Don't smoke, drink lots of water and exercise".

In reply to:

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Many of you said that I should post my info for free. I don’t really agree with that since I have spent thousands of hours researching hundreds of books to try to help others. But since you are all so adamant about it, I will post as much as I can shortly. But since I am studying to be a nutritionist and writing other books and making this my full time career, how should I support myself? Will you guys give me your services for free?

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Wow, you have a LOT of nerve, pal!! You happen to be using KickAS, which has NEVER charged me a DIME, to sell your advice for the price of your book!!!! These people here have probably spent just as much money as you looking for successful treatment, and HAVE received it through medications and traditional treatment, one way or another, which you so flippantly advise people to stop!!!!

In reply to:

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(I won’t mention my site name again because I am not trying to sell this time)

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Bottom line, this site is NOT for spamming. AT ALL. Not a hundred times, NOT eight times, NOT even once.

And it IS free.
Sheesh.

Rox

If I'm ever reincarnated, I wanna come back as Lara.
http://www.geocities.com/artisan1998.geo/index.html

Hi Allen,

I have heard of the Gerson Therapy. Actually I have all the information for it from the clinic. A health store employee told me about it and said I should go to the clinic. Personally I am always interested in how different people have beat this disease. No one drug or therapy seems to work for everyone. We all react differently to different regimes. Gerson's is basically a vegetarian regime with lots of juicing though the information I have says not to drink water because you have to save room for all the juice. Also no animal fats or nuts including butter. I have thought of trying it but it seems a little complicated with all the injections and coffee enemas and such. I believe you would be dedicating each day to preparing your food and juice. It has been in my mind to give a version of it a try but not sure where to start actually. I have been doing the NSD for a little over 6 months now and have not had the success that some have had on it. Did you do the full Gerson Therapy? Just curious. BTW- apology accepted.

Deborah

There is no drug stronger than a good attitude.

Hi Alan, apology appreciated and accepted.

I read your programme with interest, and with a few exceptions, it sounds very similar to alot of what I've been doing for the past two years. I now own a juicer and a bread maker (so I can bake wheat free bread). I have altered my diet (no wheat, no cow dairy), taken massive amounts of vitamin & mineral supplements, flaxseed oil, MSM, Bio-K, digestive enzymes, herbal anti-inflammatories and pain killers, am more active than I have been in years (dance and pilates classes, not to mention walking whenever I can), see my chiropractor almost weekly and a massage therapist when I can afford to, and have recently had to make a switch from a holistic/naturopathic treatment plan, to a pharmaceutical treatment plan, as the naturals are no longer cutting it for me.

Now, I am working in concert with my rheumatologist and naturopath so that I can do what I need to do while minimizing the damage to my system.

Although the chiropractic and massage are covered to a limited extent by my work benefits, the rest of it has come completely out of pocket at over $300 Cdn per month. At an exchange rate of $1.75, that's about $525 US a month, which is an extra $6,300 a year. I can't afford this any more on top of everything else, as I must also eat (that cost doesn't include the more expensive foods I'm now buying), fix my ever crumbling house, repair my 11 year old car, and any number of usual costs over and above my medicals.

I appreciate very much that you posted as much of your programme as you did. And I'm thrilled that it worked so well for you. I hope that it will help others as much as it did you. However, while not rejecting it completely (I am, after all, still working with my naturopath), I cannot say that it will work for me.

I hope that you will stick around here, Alan. KA is one of the best things that's happened to alot of us for the support and love alone. We need people here who know their stuff and who are willing to be there. While you aren't feeling the effects of your AS at this point, I'm sure that we can help you out as much as you may be able to help us.

Hugs,

Kat