Hello everyone,
Thank you for you interesting posts.
Why did they reject you for humira?
My sedimentation rate was not high enough.
I am now left to die at home and poison myself to death with NSAID.
I hope I have a heart attack soon, I am taking a double dose of Celebrex 400 mg.
please find a doctor who can work around that reason. my sed rate and CRP were never above borderline. old doctors said that meant i didn't have an inflammatory arthritis; my current rheumy says hogwash to that.
its very very common for people with spondyloarthropathies not to have either marker in our blood. the entheses are a nonvascular structure and thus the inflammatory markers often don't end up in our blood.
too, we flare and then are a bit better between flares; try getting blood work done when at your worst, that might make s difference. at my worst, i couldn't walk from the bed to the bathroom without assistance, so no way could i get in for blood work; i always wondered in hindsight if my sed rate and CRP would have been higher at those times.
but really, its common for them to never be high. there really is no correlation for many between those markers and our symptoms.
that is NOT a good enough reason to be denied.
find a doctor who is smart enough to know that. and one that is motivated enough to veto the insurance companies on that one. depending on who is blocking you on that non-reason.
i read recently that someone was blocked from biologics because they are HLAB27 negative.
"they" will come up with all kinds of useless excuses.
I had a rheumy that told me that all those meds were "too dangerous". well, uncontrolled inflammation is dangerous too. not to say anything about lack of quality of life.
don't let them off the hook that easily.
