Can we have a whining and complaining section? For flares like the one I'm in the past couple of days, I would just like somewhere to gripe. Haven't been watching my diet very carefully, and it's been over 100F & smokey in CO for two weeks. By watching my diet I mean I've eaten other than beige and light colored foods this week. Raspberries, red grapes, chili sauce, etc.. ~ all of which are too high in salicylates. It seems like once a flare starts I just give up and eat anything I want. It's like shooting myself in the foot, I know. But the percocet makes me not care. It's weird. It takes my rational brain and turns it into a WTH brain. Uff. Been going to bed with ice on my wrists, hands, feet, and ankles for two nights. Merghhh.... Plus which, my sister who is so sick with lupus, RA, shogren's, raynauds & trigeminal neuralgia was so upset yesterday because her friend died from multi-autoimmune disease at 38, and now she thinks she's going to die. Well of course, we all are going to die. Nobody gets out of this alive. But it's scaring her because our older sister died last summer. I told her to ask for a kadian or fentanyl patch. She's had all this for 35 years, and I think she shouldn't have to suffer so much. Phew! Ok. That feels better. So what do you all think about my new section idea?


ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!