OK, it was just a thought. That's all. No follow-through. This is just a continuation/update of my RLS vent.
You people here are the best, most supportive, funniest people I know. Just sayin. But seriously, I love this place.
Mkay, my beef for tonight: I'm having an awful time with the restless legs thing. It's is 24 hours/day of awful, terrible pain. It's so hard to describe, but the pain, very unlinke AS pain, is really hard to handle and manage. I have to knock myself out with ... well tonight it's double dose of zopiclone. I end up sleeping quite a bit on this stuff. Whether it's restorative sleep is another story, but sometimes I can rack up 12 hours of sleepy time. And have a great sleeping pill hangover. Much fun.
Tried just about all the drugs and alternatives now, and the only thing that sort of helps is the old standby: 3000mg neurontin and a bunch of morphine.
Mirapex, parlodel don't touch the RLS stuff, and now it appears, I can add Requip to that list. The initial side effects are nasty, but you tough those first few days, and then hope for a miracle. haha. Not my day, I suppose.
All bloodwork is normal still, and fatigue is through the roof. AS is mostly still controlled with NSD.
Anyone else have some other med/therapy you think I should try? I'm starting to lose my mind. <k
Thanks! You guys rock!
