Hello Jen,
This is my first time responding and yes, you drew me out of the wood work... I have been reading the daily threads since I was first diagnosed in late spring. My Doctor told me about this site. I was amazed by what I found here - I felt like I fit!
Now I have been going to many medical appointments, working full time, dealing with pain and trying to deal with a very busy family life. Whenever I get two minutes, and can find a computer available, I take a peek and find comfort in what people wright and how most people respond.
This is my first response because it moved me and I felt it needed to be said that I am sorry that a few people do not find the comfort they need. I do believe that the information that is shared here is informative, moving and comforting. I would like to thank all those who have shared and continue to share, but please remember not everyone is as capable of expressing themselves in type, let alone in person, and some of us have just given up talking about our issues because we are sometimes upset with how we might sound to others, even our own families
I must admit that I found the whole process of joining KickAS rather frustraiting, and I finally got my 15 year old daughter to figure it out for me last week. Last night someone wrote something and I did not send the response I had typed because I felt my response might be considered inadequate. Today I asked my daughter to help me find out how to start a thread and we couldn't. She told me she would try again tomorrow.
Jen, I am sorry you felt unsupported but people sometimes need and give support at different times and in different ways.... I am glad you had the courage to speak up and I am honored to hear your story.
Thank You!
Best wishes.
Beth
