Hi Possi
Lovely to hear from you.
So sorry about the dreadful reactions you've suffered with from the TNF's/Biologicals etc. None of these meds come without some sort of side effects do they? It seems to boil down to a choice of which is easiest to live with (or, I should say, the least unpleasant/harmful?!)
B4, and for several weeks after, my spinal op in 2005 I was only allowed the "3 P's" as well, and I was in agony! I simply can't exercise without NSAIDs, so the surgeon took pity on me and allowed me to go on to a low dose of Voltaren after a couple of weeks as I was in so much pain (he said anything else would stop me healing properly
) Even the extra morphine wasn't helping.
I also find Pred really aggravates my jaw pain, as well as all the other, usual probs so, like you, I hate having to be on it
It's a hard thing to have to learn but "one day at a time" seems to be the only way sometimes, especially in the middle of a flare. You're right, not being able to do right for doing wrong is not fair! Having to cope with Diabetes as well as all this $#@& must be the absolute pits!
I do hope your Dr can come up with something to help you soon.
Hugs,
Sue
