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Joined: Sep 2001
Posts: 6,391 Likes: 1
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 6,391 Likes: 1 |
Eric has been having some problems for about the last month. We went to the Orthapedic Surgeon yesterday and he ran some blood test, and Erics Sed rate and CRP levels are real high. The mighty AS has come back,  only this time in his hips. He is walking with a funny gait now, to try to compensate for the pelvic pain he has. His Rhuemy has decided to wait for the MRI that the OS is trying to schedule (damn insurance) and take it from there. He is on prednisone for now, with the Rhuemys home number tucked away in my wallet in case it is needed over the weekend..... At least I still have 2.5 boxes of Enbrel in my fridge that is good. The exp dates go from 4/03 - 8/03. We had a good year. Erics AS has been in remission for one year this month, so we know that it can be done. Now we are going to fight like the devil to put him back into remission. This is just a temporary setback. Basketball season is just around the corner after all. The child loves to play basketball....... All prayers welcomed. The kid needs them....... Thanks Lori  
"You will find as you look back upon your life that the moments when you have truly lived are the moments when you have done things in the spirit of love........."   
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Joined: Apr 2002
Posts: 1,358
Bronze_AS_Kicker
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Bronze_AS_Kicker
Joined: Apr 2002
Posts: 1,358 |
Im so sorry to here AS is back ,Our prayers are with you and your family.
Bradford
To the world you may be one person,but,to one person you may be the world.
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Joined: Apr 2002
Posts: 3,739
SENSational_AS_Kicker
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SENSational_AS_Kicker
Joined: Apr 2002
Posts: 3,739 |
Oh Lori Bad news. Well, you did it before - lets pray you can do it again. Give our love to Eric.  Maggie
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Joined: Jul 2002
Posts: 695
Commanding_AS_Kicker
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Commanding_AS_Kicker
Joined: Jul 2002
Posts: 695 |
Lori, I am sorry to hear that Eric's AS has reared its ugly head again. I would much rather see his pain come to me and let him be a kid and enjoy everything that life has to offer than him having to worry where or when the next ache is going to show up. He is in my thoughts and prayers. GRRRRRRRRRRRRRRRRRRR I hate it when kids are forced to deal with these situation!!!!! Bob Beauty is in the eye of the beholder. Behold the beauty of Orca Art
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Joined: Sep 2001
Posts: 6,248 Likes: 5
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 6,248 Likes: 5 |
Last post I wanted to read here. Tell him he's still my darn hero. Maybe he's built up some sort of immunity to the ENbrel. Who knows?!? Let Doc's figure that one out. As for basketball, tell Eric when the AS is hurting and he feels a step slow pull up and shoot from the outside.Key to B-ball and AS flares is a good outside shot, particularly when heredity didn't make it likely that you would be jumping center. Lori remember sometimes it goes away again just as fast as it came. Ain't nuthin' stoppin the bushels of good thoughts headin' his way from NYC or thereabouts. Even think I saw Bruno heading to church to "compel" Fr. Guido to offer up a novena.   stevec-they also serve who stand and wait
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Joined: Feb 2002
Posts: 3,221
Imperial_AS_Kicker
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Imperial_AS_Kicker
Joined: Feb 2002
Posts: 3,221 |
Lori, I am so sorry to hear of Eric's remission ending. It breaks my heart to see any child suffer from this &*^%$^%$$ disease. Will for sure be sending out some extra prayers for Eric to get through this and back on the road to his next remission SOON. Take care, Pam  "Just like moons and like suns, with the certainty of tides. Just like hopes springing high, Still I'll rise." Maya Angelou
 My boys, Noah & Isaiah
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Joined: Sep 2001
Posts: 7,427
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 7,427 |
Prayers on there way for your special little guy.... Just hate hearing of the little fella not feeling well..jsut seems so unfair for a child to have to suffer the ravages of As.....  Gentle hugs and prayers... keep us posted... Toodles! Angie  
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Joined: Sep 2001
Posts: 1,195
Grinning_AS_Kicker
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Grinning_AS_Kicker
Joined: Sep 2001
Posts: 1,195 |
Lori Sorry to hear my main man is back in our ranks... You know there is a lot of love heading north from here for my main man... Keep us advised... Mike 
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Joined: Sep 2001
Posts: 6,762
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 6,762 |
My heart goes out to you both, not the kind of news I wanted to hear about my little miniature golf playing pal Eric. But on the bright side, Enbrel did it once, it will do it again. I just read a medical article (Medscape, I think) about Enbrel and Remicade that suggested strong evidence that Enbrel not only relieves the symptoms and prevents future damage but also can repair damage already there. Evelyn sent me an article that suggested the same may be true with Arava and AS - - one of the few articles I've seen linking Arava and AS and good results. The other thing is that although everyone worries about things like TB and Enbrel, another article states that 90% of the cases of TB with people on Enbrel occur in countries where TB risk is much higher than the US, and can be reactivated TB. But a bummer he has to go back to the needle sticks. Hopefully it will kick in after a few short weeks before it gets any worse for him. ((((HUGS)))) to you both. Cheryl  Dogs don't care if the house is messy
My guy
If you can't be kind, at least have the decency to be vague. Author Unknown
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Joined: Sep 2001
Posts: 2,328
Mystical_AS_Kicker
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Mystical_AS_Kicker
Joined: Sep 2001
Posts: 2,328 |
Lori, Everyone is right, he can go into remission again. Maybe this is a flare up and will calm down? I pray it's short lived. Hugs to you all, linda 
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