Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Trying really hard not to hate Doc's

Yo Shtevo...!!

Beer is good food, 'bout to crash, just whack the wacky quack!!

Peash-
Lincster

Linc O'Brien

Beer is good food and I haven't had a bit all day. THanks for the laugh.

 
stevec-they also serve who stand and wait

So sorry to hear what you are going through - especially Diane - You have my thoughts and prayers for a solution.

As many people do on this site, we understand your frustration. For myself, it was initailly suggested that the chair I was sitting on at work wasn't level & that my posture was crooked to compensate for it. I also ended up having traction sessions for approx 6 months (which I had to pay for as it was not covered my the NHS). After that, there were various diagnosis' ranging from Lumbago, Sciatica, Depression, being told to loose weight and can you believe it, I was also told that the handbag I carried around was too heavy and possibly caused me to walk lopsided therefore caused the pain!!

I wasn't until I came to Australia & found a great Dr (that admitted that he didn't know everything, but that he would do his best to find out) that things started to improve.

The long and the short of it is - DONT GIVE UP. There will be someone out there that can help, just keep looking AND use all of us to vent your emotions.



Take Care & Have Fun

Gwyn

Steve,
I am glad I was able to give you a smile in all of this stress going on. Lord knows you have always been able to make me smile with your posts.

And I have it on good authority, that if the B**ch slappin don't work?.... a three finger pimp smack will always get their attention.

Sending out good thoughts to the lovely Diane and all of you.

Take care,

Pam

"Just like moons and like suns, with the certainty of tides. Just like hopes springing high, Still I'll rise." Maya Angelou

LOL Pam...
Art told me that years ago..when I had a real bad nurse...a real bad one...he said she deserved a "pimp slap" The lady was so arrogant...no other method would have been as effective.

take care...


Toodles!
Angie

Hello Steve....
I read your post yesterday and am at a loss for words. I wish I knew what to say. You have been blessed with a beautiful wife and a trio of beautiful bambinas. I can only say that I will continue to keep you in my prayers. I know it's hard when you get the arrogant docs. Been there. Not sure if you remember the fancy schmancy rheumy I saw a year and a half ago...he said I did not think I had spondy. He suggested I do "200 situps a day..and you have mild carpal tunnel" RIGHT. I went to my neurologist.....he tested me. I did not have carpal. He said "Honey, you have AS...look at your hands and your back" 200 situps STILL runs thru my mind at times. He DESERVED that pimp slap too! Then I find out, I have AS, Spondylosis, a bulging disc, and a herniated disc. I still cant believe he went to medical school.

I wish you the best my dear friend..and hope that you get some answers real soon. Turn the frustration in power...and things will work itself out....the Santos family is on your side as well...

Many hugs and prayers heading your way...



Toodles!
Angie

Steve,

I didn't respond when I first read this, because I really could feel your anger and pain, and I had no idea what to say. Still don't, but figured I need to say something. Just keep in mind that, perhaps "no news is good news." If the Doc's in their "infinite wisdom" can't find the problem, then maybe, just maybe it isn't too bad. I really hope it's not, but can surely understand how you and Diane must be feeling. Please keep me informed.

Your Friend,
Johnny

Hey Steve.

I well send re-treads and newley minted prayers your way. Nothing but the best for my Jamie bugs mommy!!! If I send both kinds then we are covered no matter what.......right???

Thanks for thinking of my little man. He is doing much better. I will have him for my regular Friday night Nana duty....

Send Di my best wishes and let her know that she is included in my morning and nightly prayers.

Hugs

Steve, Im sorry to hear that about Diane and just hope all will be well. However I must agree with Ya on the Dr thing. I think all of us with chronic illness come to that point sooner or later. You endured it with Yourself but now to have to deal with it with Your Wife is tooooooooo much.....Doc's HURRRRRRRRRRRMPH!!!!!
On the other topic, isnt it funny how so many of us seem to wind up going thru the same process in the persuit of a DX. At age 18 I wound up in the hospital for a week on traction, simply because they couldnt figure it out. In retrospect that would allmost seem grounds for malpractice........If only some way all of us could be repaid for the cost of getting those missed DX's..........Dosnt seem fair does it?

"ASKicking" "WUDCRVR"
WOOD IS LIKE LIFE
WITH WORK
YOU CAN CREATE BEAUTY

Hi Steve.

Sorry to hear about your problems.

I had exactly the same thing happen to me when I was first DXed with AS, I had attended all sorts of Doctors and eventually ended up with an Orthopaedic Consultant and he was treating me for prolapsed discs, however to keep a very long story short he sent me for a MRI scan and on a second visit for X-rays.

After having the X-rays of my lower back and pelvic area taken, the radiologist informed me that I had inflamation of the sacroiliac joint. He then forwarded the X-rays along with his report to my Orthopaedic Consultant who I attended a few weeks later for yet another appointment.

During this appointment the Consultant went over all this different types of treatment I could have for the prolapsed discs, I sat and listened, and told him that I already had all the treatments that he had talked about. He then told me the only option left was surgery and he then went on to tell me the downside and dangers involved.

I interupted him at this point and asked him about the inflamation in the sacroiliac joint to which he replied "THERE IS NONE." I pointed out that the radiologist told me that I had inflamation and it was then that he pulled the X-rays out of their sleeve and out popped the radiologists report along with the pics. (hadn't even bothered to look at the X-rays or read the report)

The Consultant read the report, looked at me and said. "You see all that stuff I told you about your discs, forget it, this is much more serious".

SUCCESS DIAGNOSED AT LONG LAST.

Steve I know exactly what you went through in the past and what Diane is going through at the moment, I think 95% of medicine is GUESS WORK and the remaining 5% is blatantly obvious injuries etc.

So give Diane my best wishes and I hope everything works out in the near future.

Good luck

Ken