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Joined: Jun 2007
Posts: 531
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Veteran_AS_Kicker
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Joined: Jun 2007
Posts: 531
im not sure if Luigi works for this place but I found it not to be helpful at all.
I went there back in 2011 after TNF therapy failed. i felt pretty good going in actually.
After doing the therapy I flew back to the USA and actually got worse. It did not help at all.
Luigi mentioned that it takes time after the tx to work and you might feel worse before you feel better. According to the doctor at the place he said that's nonsense. the doctor also advised NOT to stop taking any of your AS medicine. so clearly they dont have a lot of confidence their tx could work on it's own.
It was a nice visit and I got a nice quiet vacation but I found it did not help at all.

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Frederick
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Originally Posted By finnari


According to the doctor at the place he said that's nonsense. the doctor also advised NOT to stop taking any of your AS medicine. so clearly they dont have a lot of confidence their tx could work on it's own.



Stick with what the doc. says so much of what you read on Forums like this are rubbish

Joined: Jan 2006
Posts: 194
Likes: 1
First_Degree_AS_Kicker
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Joined: Jan 2006
Posts: 194
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This is great! Radium Palace bucket list for me. My result is so similar, but with annual visits to the rural Health Mines in Montana, USA instead of the old world elegance of the Radium Palace. May treatment means the summer is optimal for me as well and by April my body reminds me that it is time to visit again. One of these years I'll replace Montana with the Czech republic. So glad you posted Luigi. May your pipes be clear and your mansions many.


If you ever drop your keys into a pool of lava, forget about them, cuz man, they're gone.

- Jack Handey.

.......................................

http://h20girladventures.blogspot.com

Joined: Jan 2018
Posts: 13
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Joined: Jan 2018
Posts: 13
Hi L33,

Six weeks post-treatment now and I'm still up in the air about the efficacy of radon. I had a terrible one-month flare up since returning from Bad Gastein in Austria which I have been unable to treat with anti-inflammatories as we are trying to conceive.

The one-month flare is a well-documented response to radon treatment but with such a complicated disease I'm always dubious.

In the last week, I have started to feel a gradual improvement. In fact, I have been running/shuffling again with the assistance of well-timed paracetamol. That's saying something.

I actually decided to jump on KickAS today as I woke up this morning with zero pain and very little stiffness. The last time my SI joints felt so 'normal' was ten years ago when I had a steroid injection. It was very different to a 'just OK' morning.

My severity of symptoms fluctuates so significantly over time (coupled with my cold turkey on the anti-inflammatories) that I won't be making any calls on my radon treatment for another six weeks at least. But when I do, either way, I'll pop a post on this forum.

Wishing you the best,

Ag


HLA B27 +ve. Localised pain in SI joints, lumbar and thoracic spine. No swelling. Eyes OK, peripheral joints OK. NSAID usage from 2005 to 2018, meloxicam.

Least favourite saying: No Pain No Gain.

2005 - Diagnosed after two years of debilitating SI pain, early 20's
2017 - Waitlist for rheumatologist in Ireland=14-months
2018 - Seeking alternatives
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