Kickas.org Forums Treatments, Drugs and Alternatives AS Pharmacy Drug/Medicine for AS Cure - is there any hope

Guys,

Just wanted to know whether any hope in near future from scientist to cure the AS by drug/medicine or any alternative therapy in coming few years.

Pain killer /Biologic/Saaz/Methotrexate are temporary relief.

Any one have idea, please reply. Whether any progress is going on this disease.

Diet option is good but not for lifetime.

I wa

When I asked someone who knew about such things I was told that even if there was some sort of miracle cure just around the corner that any new medication can take several years to get from the laboratory to the pharmacy. So I'm not holding out any such hope for the near future.

As for diet as an answer to our problems I don't even believe that any sort of diet helps in A.S. If diet was any help then all rheumatologists all over the world would be recommending it to their patients.

So don't expect any immediate new medication from the scientists. Just do what we have being doing for years and get on with our lives as best we can. We have been born too soon I suppose.

Frederick - agreed about a cure from a meds roll out, it aint gonna happen any time soon !

As far as diet goes,many an ASer has found amazing relief from the NSD / LSD, not a cure, but certainly an excellent way to manage. Just see the Forum here, 'Diet Success Stories, with 523,185 posts : which does not mean that number of single stories, but a very high percentage of those posts are success stories. (When it was at some 250 posts, I printed the lot out...!) Don't decry diet. In addition, much is in the medical news about diet and inflammation. This triggered from the great work by the 'Human Microbiome Research Project'.

As for rheumatologists advocating diet. Some are reported at doing just that. Not many, but, some. Apart from those, to remember that many a rheumy has a well filled back pocket courtesy of pharma. That patient groups, patient symposiums are paid for by pharma and...each doctor presenting is 'paid'by pharma. The going rate is reported as Euros 3.5k Only a rare doctor would spurn this addition to their basic earnings.

Corruption everywhere. Soul destroying - and certainly does nowt for good health !

I am sorry we can't agree on this one Molly but never mind everyone to their own etc. No treatment will work unless the patient has some faith in it and I have no faith in diet as a treatment for A.S. That may well be my loss and one day all will be revealed and I will be proven wrong.

One good thing with diet is that at least it is unlikely to do you any harm and that is more than can be said for some of the drugs they have us swallowing. I have found to my cost that at least some of the treatments they have given me in the past were highly dangerous and have been removed from the list of permitted treatments.

The worst was probably when radiotherapy was supposed to be the latest miracle treatment for A.S. I don't know if it ever occurred to anyone if it might be dangerous and cause cancer or not but I was given such treatment in the early 1960s. and then again in 1981.

There is a side effect to A.S. called cauda equina syndrome (check it out on Google). At first they thought this was what was giving me my problems. It was not until about the year 2,000 that I was seen by a neurologist. He correctly diagnosed that the nerves that run from the spine and down the legs were damaged by radiotherapy.

Their is no safe treatment for such nerve damage and two prominent spinal surgeons have refused to operate as they consider it too risky at my age approaching 70 at the time. It is due to this nerve damage that I am now in a wheelchair and will probably always be.

Many NSAIDs. including some that I have been on have been banned due to them being dangerous. Liver and kidney damage are as often the blamed cause. Yes I am still on some NSAIDs. and I also used Anti-TNF(Enbrel). I wonder how long before that is banned.

So if you are ever offered a "miracle cure" just be very careful before you agree. There is never such a thing as a miracle cure and there is always a price to pay.

I have been worried about meds as well. I am willing to try diet, that for me is at at least “safe”. I was just approved for Enbrel. I’m afraid to start it tho. It seems that once you add some of these harder drugs, you always have some sort of trade off. I don’t want my general health to be at risk but I also need my job. I’m super worried about the trajectory of my disease. It’s very isolating. I’m glad this forum is here though.

Was in the middle of a response Frederick, when my laptop crashes. Has got gut problems...Sigh. Just did it again, now, dementing.
Will leave for the nonce, but do know of Cauda Equina - another bedfellowof AS !

NSAIDs killed my gut wall. Years of horrible problems. Cannot do any of the biologics. First stage skin cancer, an open invitee to a full blown lymphoma I will not entertain.

I prefer to keep to the odd pain killer, LDN and a quasi adherence to the LSDiet. Has kept me going.

Better stop before this is alsokicked out of field...!!

Take care - MollyC- Keeping on, Keeping on

Here's an interesting looking F/B AS diet group - no, haven't had a look -

The Low/No Starch Diet for Ankylosing Spondylitis
5,366 members

My doctors will disagree with Frederick. They are all in supporting the diet and my results Medically. Not going to start a battle or argument. Everyone has their own path that works, I say take it and do your best to succeed. I will not judge any one on their battle. I wish the best for everyone.
ETTE
Darrel