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Joined: Dec 2008
Posts: 718
Decorated_AS_Kicker
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Decorated_AS_Kicker
Joined: Dec 2008
Posts: 718
Hi,
As I indicated, I have been on NSD and parallelly on Humira (Exemption) for more than 5 months. I started getting relief from almost nil walk. Now, I started feeling pain again and I am barely able to walk only 50 m without pain. I am wondering how pain started coming back while on NSD and anti TNF.

After starting NSD, Iron level has increased and Doctor adviced to stop Non Veg for 2 weeks. Iron level reduced after 2 weeks. It again increased after I resumed Non Veg. Presently, I am restricting Non Veg. It appears, iron level reduces while stopping Non veg. But “Ferritin” is increasing constantly over 5 months. Now iron is 218 against 180 (max) and ferritin is 468 against 322(max). How to reduce Ferritin. I am taking almonds, dry grapes, dry fruits and coconut meat almost regularly as I have indicated. They have iron (non hemo). Are they culprit?. Tofu also has considerable iron. I am feeling less energy without Non Veg & milk products. If I have to cut these, then it will be very difficult for me. I am wondering, how to come off from this.

Whether improvement will be felt if iron & ferritin becomes normal.

I request advice / guidance for further improvement.

Regards.

Jay

Last edited by jay_bharat; 01/20/17 12:01 PM.
Joined: Sep 2001
Posts: 2,364
B
Colonel_AS_Kicker
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Colonel_AS_Kicker
B
Joined: Sep 2001
Posts: 2,364
My last blood tests also showed high iron levels - ferritin etc - and so my GP had further tests to check whether I had haematomachrosis (various other spellings available). I didn't, but he thinks I am a carrier for the gene. He kept looking at me, probably trying to judge whether I was turning yellow. I don't know how that would work for you.


'Then you should say what you mean,' the March Hare went on. 'I do,' Alice hastily replied; 'at least - at least I mean what I say - that's the same thing , you know.' 'Not the same thing a bit!' said the Hatter.
Joined: Dec 2008
Posts: 718
Decorated_AS_Kicker
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Decorated_AS_Kicker
Joined: Dec 2008
Posts: 718
My GP mentioned since iron reduced after stopping NV, genetic test is not required.

JAY

Joined: Dec 2008
Posts: 718
Decorated_AS_Kicker
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Decorated_AS_Kicker
Joined: Dec 2008
Posts: 718
Whether taking Apple Cider Vinegar be of any use in my case?

Jay

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