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Joined: Apr 2009
Posts: 49
Member
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OP
Member
Joined: Apr 2009
Posts: 49 |
Hello, does any one have a similar combination of diagnoses? I searched the forum and have not found many mentions of psoriasis, so it looks like it is fairly rare to see the two together. I have had an AS for more than a decade and have been recently diagnosed with psoriasis- despite my AS being happily under control since a while through a combination of diet and exercise... Now wonder if the AS diagnosis was wrong and should have been psoriatic arthritis (which could explain no loss of flexibility in spine)...
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Joined: Jul 2001
Posts: 3,334
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Joined: Jul 2001
Posts: 3,334 |
Hi Leonila. Yes, I have psoriatic arthritis as well as AS and it's on my scalp and back left ankle and my toenails. When I was on Remicade for a month my skin cleared up almost completely but after I stopped it, the arthritis came back like a bad penny. I call it just another buffet item we have to deal with.
Timo
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Joined: Sep 2001
Posts: 6,179 Likes: 23
AS Czar
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AS Czar
Joined: Sep 2001
Posts: 6,179 Likes: 23 |
Hello, Leonila:
I have "classic" AS presentation and progression, and during the entire time have had both manifestations of psoriatic lesions. Although the NSD has helped eliminate symptoms, I still get a small patch now and again.
Personally, I do not believe there is any major difference between PsA and AS, however also believe that psoriasis itself is caused by a different germ and perhaps mechanism other than molecular mimicry.
The Mercola site has a dietary suggestion for both rosacea and psoriasis: Eliminate all grain-based foods...STARCH.
If You need a little more healing, it is good to take the oils, but failing that, I strongly recommend The Road Back Foundation for their physician recommendations in providing antibiotics to help treat AI diseases. The combination of NSD plus antibiotics kept me in remission 16 years and counting. . .
HEALTH, John
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Joined: Apr 2009
Posts: 49
Member
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OP
Member
Joined: Apr 2009
Posts: 49 |
Interesting... I have become much more lenient in my diet in the past couple of years, as I could keep AS under control via running and exercise (turned out to be a fairly effective pain killer and an anti-inflammatory). But it looks like the diet is still necessary to avoid other autoimmune issues...
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
I had psoriasis, but never too badly. But the humira has really made that go away.
The humira works pretty well over all, but really eliminated the psoriasis.
My aunt was dx'ed with psoriatic arthritis.
I was originally dx'ed with undiff spondy, but now the best AS info says if you have sacroiliitis as I do, you by definition have AS, so I might have AS. Doesn't matter; humira is effective.
Too, I think my rheumy wrote something about crohns to get me weekly humira (down from every 2 weeks)....that's what paperwork I saw said. I do have an inflammatory GI component, so maybe at the root is mild crohns? Again, doesn't matter what its called because humira is effective.
There is a lot of overlap of the symptoms, and it doesn't really matter which spondy it is because they all respond to the biologics for many people. I'm lucky to be one of those people and the biologic helps with all the symptoms, some more than others. I still have a bit of neck and SI issues, some enthesitis at times. dry eyes, some mouth sores, constipation that comes and goes, but compared to before, its so much better.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Sep 2013
Posts: 33
Member
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Member
Joined: Sep 2013
Posts: 33 |
Hi everyone,
I have AS and sometimes a Little manifestation of psoriasis in my left elbow an in my nail toe, but with a gluten and grains free diet dissapear.
Sue, a question? do you take a cotreatment with humira like metotrexate?
Anne
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
Hi everyone,
I have AS and sometimes a Little manifestation of psoriasis in my left elbow an in my nail toe, but with a gluten and grains free diet dissapear.
Sue, a question? do you take a cotreatment with humira like metotrexate?
Anne "just" humira. i am still on low dose naltrexone from before taking humira; my rheumy let me stay on it because it had always helped my enthesitis and it helps keep my immune system healthy. and i use flector patches (an NSAID patch) over my SI joint. and I take a muscle relaxant at bedtime (mostly for my neck). and i do take supplements: see the list below my name. and i do avoid all cow dairy, most egg, and most yeast (breads, etc). and when I do flare, I'll take an Aleve or two for a day or two. and the Chiro to keep me lose and moving. and ice as needed. but no other "autoimmune" / "autoinflammatory" meds.
Last edited by Sue22; 11/05/15 02:32 AM.
sue
Spondyloarthropathy, HLAB27 negative Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.) LDN/zanaflex/flector patches over SI/ice vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K. chiro walk, bike no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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