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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
Oh yes, the fatigue is awful. I have always thought my fatigue was Lupus related but reading all these posts, who knows? I just know I am so fatigued.
I do want to suggest that you see your gp and make sure there is nothing else wrong. It is so easy to get tunnel vision and think everything is disease related. There are so many things that can cause fatigue. Once, it was my heart. Once, I was very anemic. Your vitamins and minerals can be out of whack. I have had to add B12 and Potassium just in the last week.
Just a suggestion. Hope you feel better soon.
Welcome to the forum.
![[Linked Image]](https://www.kickas.org/images/flowers/Smilingsun.gif) Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Dec 2014
Posts: 202
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Dec 2014
Posts: 202 |
Fatigue is profound in AS and a prominent symptom. Some even say it bothers them more than pain.
You can wake up unable to get up of bed feeling completely wiped out.
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
Oh yes. Some mornings I wake up as tired as when I went to bed!
Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Apr 2015
Posts: 2
New_Member
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New_Member
Joined: Apr 2015
Posts: 2 |
I am newly diagnosed with AS and its been a whirlwind. The fatigue is crushing. I got to bed at 7:30 pm every night for months. I have had a yoga practice for 12 years and always had some lower back pain. About 3 months ago I started seeing doctors and sure enough SI joints are inflamed. All scans lit up as a X-mas tree they said. I started Humira last week. And just in the week, the arthritis has spread to my hands and some to my feet, my shoulders and neck. This morning I woke up without being able to move my neck.
Besides the fatigue, the pain is excruciating. I haven't been able to exercise or do yoga for last 6 weeks now. Every morning I wake up and I can hardly get out of bed. I feel like I was in a fight the night before.
I have been on a gluten/wheat free diet (only grain is rice and a handful of times quinoa) and no refined sugar, and very low dairy. I don't feel any better (my skin looks great:) )
I can see from reading this forum that Humira helps with the fatigue and pain. But, how long does it take?
Neeta
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Joined: Dec 2014
Posts: 202
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Dec 2014
Posts: 202 |
Humira will help, some people get full relief from the first shot, for others it may take three months to notice any effect.
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Joined: May 2014
Posts: 26
Member
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OP
Member
Joined: May 2014
Posts: 26 |
Jason, have you tried ginger as an anti-inflammatory? I eat a few slices (each about the size of a quarter) of fresh ginger almost every evening - until I run out and forget to buy more. :-/
Ginger is a proven natural anti-inflammatory and is also great for indigestion/sour stomach.
It helps, but it's definitely an acquired taste.
Dx 2013 RF- HLA-B27+
Meloxicam 15mg Norco 7.5/325 Celexa 20mg
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Joined: Aug 2014
Posts: 45
Member
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Member
Joined: Aug 2014
Posts: 45 |
Dmx07 & RBarnes- Thanks for the advise. I've not tried either supplement or drug. I'll check out the ginger sometime. I think I'll skip any more prescribed drugs for now; I am about totally tapped out financially from the cost of my health care. Over $1800 out of pocket this year so far... It's a good think I tend to be tough as nails and have a strong constitution, I guess. I always tell myself I shouldn't complain. I think about those with this and RA before biologics, my own grandmother became crippled/ disabled back in the day 70's/80's and I don't have to go through that. So, you know positive thinking and all that.
Diagnosed with A.S., DDD, scoliosis, sleep apnea -- Tested positive for HLA-B27 gene; family history; visible damage on x-ray; significant iritis; enthesitis inflammation; fatigue; feverish; peripheral arthritis; Osteopenia; heart, G.I., and skin symptoms - :: - Insidious and often disabling pain started in my teens & 20's with heel pain; chest pain and hip-buttock in my early 20's; low back pain in my late 20's; mid thoracic and cervical in my 30's. Biologics in my 40's. (On remicade)
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Joined: Apr 2006
Posts: 46
Member
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Member
Joined: Apr 2006
Posts: 46 |
I am on Enbrel injections for the last seven years. The enbrel has helped with the pain. But the fatigue is horrible. I am 63 yrs old in good health and fairly active. (biking, walking) I am not in a flare. For the last six months I will take a 3-4 hour nap, get up make dinner and clean up and go back to bed around 7 or 8. I feel good in the morning but as the day goes on I start feeling very tired. Do any of you have this fatigue without being in a flare? My blood panel tests are normal
HLA_B27 positive
Lupus
AS
methotrexate, enbrel 1 x wk, wellbutrin, zoloft, fosamax, norco as needed.
AS diagnosed 2007 HLA-B27 positive
Lupus diagnosed 1984
Humira/methotrexate inj
Prolia
wellbutrin
zoloft
folic acid, calcium, vit D, vit C Magnesium Taurate.
Centrum 50
Total knee replacements rt and lft 2009
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
The fatigue can be soul-crushing. I've been on biologics for ten years and have more energy than I've ever had. It was a revelation to me just how bad the lack of energy was and how long it had been going on - since very young childhood.
That said, I still feel fatigued a lot. Sometimes I wonder if the fatigue is the edge of what I would be feeling if I weren't on biologics.
Query - How many of these feeling constant fatigue have had a sleep study done to see if there is an underlying problem. They found I have restless legs and at one point, during a period of extreme stress, my alpha waves never turned off so not only was I not getting recuperative sleep, but my fight or flight response was working 24/7. Once I got the restless legs treated and dealt with the stress things calmed down. I still feel fatigue, but nowhere near as badly.
Warm Hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Apr 2006
Posts: 46
Member
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Member
Joined: Apr 2006
Posts: 46 |
Thank you Kat for your reply. I have had a sleep study done, it was okay. I will talk with my rhuemy. Maybe my enbrel has stopped working.
AS diagnosed 2007 HLA-B27 positive
Lupus diagnosed 1984
Humira/methotrexate inj
Prolia
wellbutrin
zoloft
folic acid, calcium, vit D, vit C Magnesium Taurate.
Centrum 50
Total knee replacements rt and lft 2009
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