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Joined: Jun 2010
Posts: 3,865
EricaK Offline OP
Royal_AS_kicker
OP Offline
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865
So... I had a curtain opening accident two weeks ago tomorrow am. I knew it was bad in the nanosecond it happened. But this time, I went right to the med chest and got a prednisone & ice. Then went to a 3 hour class, went and swam slowly for about 20 minutes, then took a muscle relaxer. The next day same thing... without the class. Day 3 my stomach hurt too bad to take any more pred, so just kept up with the ice and swimming and muscle relaxer after. No muscle relaxers for 2 days now... well, other than what I take in order to sleep without pain. Today I'm close to where I started two weeks ago.:r


ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!

Joined: Jan 2008
Posts: 21,346
Likes: 1
Very_Addicted_to_AS_Kickin
Offline
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346
Likes: 1
Sorry the pred hurts your stomach.

How much were you taking.

I do well on 4 mg pills, 6 day medrol dose pack taper.

But I know not everyone fairs well on them.

I guess I'd have done same as you did.

Feel better soon heart



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Jun 2010
Posts: 3,865
EricaK Offline OP
Royal_AS_kicker
OP Offline
Royal_AS_kicker
Joined: Jun 2010
Posts: 3,865
Hi Sue!!!

I took 5mg both days. My body seems to hold a grudge against all meds.

I'm not griping mind you. 40+ years on NSAIDS was pretty good luck!

Between ages 8-11ish I took LOTS of steroids and lots of codeine. Sooooo it seems that not only have I had to give up NSAIDS and most forms of narcotics, now prednisone seems out as well.

Icing my sacrum and taking the muscle relaxer really helped that genitofemoral nerve pain.

I guess when one old standard quoits working we get busy trying something new!


ANA+ RF+ Rh- HLAB27+
Dx JRA 1967, GAD 1997, AS 2009, HMs 2010, CPS 2013
pulmonary edema w/ NSAIDS 2009

Movin' it so I don't lose it!

Joined: Jan 2008
Posts: 21,346
Likes: 1
Very_Addicted_to_AS_Kickin
Offline
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346
Likes: 1
For 16 years, ice has been my number one go to.

Since 2001, zanaflex has been a good tool.

Sorry you can't take the other stuff, but hope you heal soon.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Jul 2013
Posts: 376
L
Fifth_Degree_AS_Kicker
Offline
Fifth_Degree_AS_Kicker
L
Joined: Jul 2013
Posts: 376
ice and lots of it. I also find vitamin c , PH drops in my water and magnesium can help as well.

Joined: May 2012
Posts: 17
E
New_Member
Offline
New_Member
E
Joined: May 2012
Posts: 17
Please tell me, I am having a very difficult time with my SI joints. Went to have an SI joint injection, under the CT scan and the doc says, "sir, your SI joints are fused and I cannot get in there". He spread the steroid in the area anyway, felt good for two days. Now I seem to have severe SI pain on the right that just about keeps me from walking ver far. My question, has anyone else had this and any success with treatment! and what was the treatment.
AS for 40 years, bowel resection 16 years a go,reverse shoulder replacement on the left and soon the right.
Remicade
Prednisone
Pain Meds
Ibuprofen
Really need help for these SI joints
Thanks for any suggestions
Eddy

Joined: Jan 2008
Posts: 21,346
Likes: 1
Very_Addicted_to_AS_Kickin
Offline
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346
Likes: 1
Originally Posted By: Eddy
Please tell me, I am having a very difficult time with my SI joints. Went to have an SI joint injection, under the CT scan and the doc says, "sir, your SI joints are fused and I cannot get in there". He spread the steroid in the area anyway, felt good for two days. Now I seem to have severe SI pain on the right that just about keeps me from walking ver far. My question, has anyone else had this and any success with treatment! and what was the treatment.
AS for 40 years, bowel resection 16 years a go,reverse shoulder replacement on the left and soon the right.
Remicade
Prednisone
Pain Meds
Ibuprofen
Really need help for these SI joints
Thanks for any suggestions
Eddy


Cortisone injections (doesn't have to be down into the joint, best shot I ever got was much more topical into the ligament area near the surface)

Ultrasound

Ice and heat but more ice than heat

muscle relaxant (zanaflex)

Flector patch (I wear one over my SI all the time, change it every 12 hours)

Methylpred

Aleve

Humira



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Oct 2008
Posts: 360
Fifth_Degree_AS_Kicker
Offline
Fifth_Degree_AS_Kicker
Joined: Oct 2008
Posts: 360
Crawl up in a ball, have a good cry then pray to god, go to sleep then hate myself in the morning followed by an arduous workout. Then I try to get back on track.

Joined: Feb 2011
Posts: 1,968
Pea Offline
Captain_AS_Kicker
Offline
Captain_AS_Kicker
Joined: Feb 2011
Posts: 1,968
Eddy, I would look into Radio Frequency Ablation. They help a lot better then shot's.


Pea
Diagnosed with A.S. 29 year's ago.
Diagnosed with Fibro 10 year's ago.
Remicade, Intrathecal Pain Pump 2013

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