Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Been a while new info! Vitamin d and not as!!!?

Hi all, l gave up coming on the forum after my wasted sacroiliac MRI 2.5 years ago no inflammation present! I've just googled som e symptoms and ended back up here lol. And seen my old posts and how nothing's changed!! However l ordered myself blood tests. And am severely vitamin d deficient 7.5...... As l was googling l noticed there are documented cases of where people been treated for as and. Have vitamin d deficiency!!! Not as!!!!!! I will keep you all informed what happens ... M 4 weeks into replacement no improvement yet but I am really really low! Hope you all gave a lain free weekend xx

I actually only found one case of a girl who had been diagnosed with AS and was found to have severe vitamin d deficiency. It was in several different websites, but the same case each time.

Would you kindly post links to the cases you found? I would love to look into this more.

They now understand how vitamin d works on the immune system better and I believe it acts on IL-17 and IL-23, both of which have been found to be integral in AS and related diseases. Something to do with how the B cells work and inhibiting T cells.

That said, if you're that low on vitamin D, I hope you are on prescription strength to jump start it. I was found severely deficient several years ago. After six months on prescription strength, my levels were back to normal. However, I now take between 4,000 and 7,000IU a week to keep my levels up. Having been severely deficient, you will also have to take high doses for the rest of your life. I vary it depending on how much sun I'm getting.

I'm glad you've come back. Stick around.

Warm hugs,

Hi will go through my history and have a look l found one in India. Then l found another will post links. Yea I'm on prescription strength l hope it eventually makes me feel better!!! Been awful 7 year!!! X

http://www.ncbi.nlm.nih.gov/pubmed/11563583. This was one I found yesterday I did see it in mire detail....

http://rheumatology.oxfordjournals.org/content/50/suppl_2/ii6.full. Scroll down a little x

There's loads if you play bout with words x

deniD - My MRI SI screening showed nothing for SI but did for thoracic - the whole works there. And also for cervicalk spine. Presently, a few years on from the first MRI screenings (Sagittal STIR, t-1, t-2, fat-supp) showed SI involvement and some SI inflammation. So, take heart.

As for the Vit-D. When I had mine checked a couple of yrs ago, H0-Hum, 9 ! Much too low. Supplemented 100,000 every month. Got it up to 37, but it dropped down to 28. Need to get it re-checked.

(Innana - am following you around on KA from thread to thread...gotta larf. Am always crossing my fingers that my internet supplier keeps going - they blost my details and claimed that I did not exist on their books ! (<raise eyebrows <LOL>) Am setting up a secondary e-mail a/c. Being locked into one is nerve wracking.) Watch this space...

Take care guys -