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#498744 12/29/13 05:12 AM
Joined: Jan 2008
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Sue22 Offline OP
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http://www.huffingtonpost.com/2013/12/28...=healthy-living

Not to minimize anyone's experience with pain, but I found I could relate to some of these things a little bit.

More sleep, if I can get it. Music.

And I still curse up a storm when my husband gives me my Humira shot and it actually seems to hurt less when I do that. smile



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Jan 2014
Posts: 8
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For me Steam bath & Acupressure & oil massages are very useful in relieving pain.........

Joined: Nov 2009
Posts: 334
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Posts: 334
a good whinge and half a bottle of wine
Work a treat for the next 6 hours...

Joined: Jul 2013
Posts: 178
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1. Hot bath with Epsom salt
2. Massage with Anica ice(rubbing ointment pain - used for horses)
3. Anti inflammatory medication
4. Cannabis leaves crushed smoothy
5. Cannabis smoked
6. Flush system with laxative followed by a small fast.


HLA B27+
Have AS since the age of 13.
Diagnosed in 2005 at the age of 22

Joined: Jan 2014
Posts: 29
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A tip on the Humira, though still painful, I was able to cut the pain of injection in half when I stretch my leg out, rest it on the heel, and relax my leg, leaning it against the table or whatever. I no longer set my foot flat on the floor. I don't pinch up the skin either, just set down the shot and push the button. I have to do it myself, my husband has essential tremors and his hands shake, I don't want him near me with a needle. smile Maybe it won't help you but I thought I could throw it out there just in case it did help.


Wife of ten years, mom to 6 children ages 9 to 1 year.

Dx with AS in November 2013, pain began in 2007

Humira
Hydrocodone
prednisolone for occasional iritis
Joined: Jan 2008
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Sue22 Offline OP
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thanks for the tip amanda smile



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Apr 2014
Posts: 51
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Posts: 51
Anyone have any tips/ info on what to do with very painful eyes ? I have been checked for uveitis/iritis and no WBC's but very dry eyes/inappropriate tear flow, with possible ocular rosacea….I am using lubricants / Refresh Optiva Tears as dr. recommended but still have a lot of pain / even headaches …I am a relatively new Dx AS/psoriatic arthritis and still trying different meds …nothing seems to help much right now unfortunately, though a combination of homeopathic hypericum and arnica with topical arnica after the epsom salt bath worked for a while -:)
So thankful to find this site !


Happiness isn't having what you want - it is about wanting what you have ….or maybe Accepting what you have …er ya that is it …..I think 👀
Joined: Jan 2008
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Sue22 Offline OP
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I too, do not get uveitis / iritis, but did have dry eyes. They hurt, felt like gravel in them, migraines from them when they were at their worst.

the only thing that really helped was methylprednisone (oral, not drops), but I took that for overall flares, nice side effect is that eyes improved, but wouldn't take for "just eyes" if no eye inflammation.

and since on Humira, almost no more eye problems. Only in this most recent flare have I had some eye pain. But not as bad as before.

Prior to methylpred or Humira:

Washing them with warm water (in the shower helped). I didn't find the baby shampoo to add anything, but that's because the dry eyes weren't from blepharitis, but rather from the auto inflammatory flaring.

Staying hydrated helps a little.

Eye drops. I used systane. I used the individual ampules because they were preservative free. And I'd use them, then when the flaring stopped, wouldn't need them for the next few months. the individual ampules lasted longer. The drops helped a bit.

Molly can tell you more. She's had the problem longer and probably worse than me. She's discussed other treatments in previous threads on the subject. PM her if she doesn't see this and doesn't respond.

also if you start a new thread in the first section of the forum specifically about your dry eyes, I think you'll get a response from more people.

Too, make sure you do see an ophthalmologist, not an optometrist. Just because you and I haven't had eye inflammation at this point, doesn't mean we couldn't in the future, though I assume the longer I go without it, the more likely it won't be one of my symptoms. But even with the dry eye problem, still believe its best to see an ophthalmologist. Too, I have diabetes, another reason for me to see an ophthalmologist.

Last edited by Sue22; 04/10/14 05:48 AM.


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Apr 2014
Posts: 51
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Active_Member
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Joined: Apr 2014
Posts: 51
Thanks Sue !
Still trying to figure out how to start a new thread …so much to read here !
I feel kinda slow on the uptake, but am using the excuse that my eyes are pretty blurry at times -:)
This helps tho …feel like I have a whole lot to learn yet 👀😊


Happiness isn't having what you want - it is about wanting what you have ….or maybe Accepting what you have …er ya that is it …..I think 👀
Joined: Nov 2013
Posts: 22
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Joined: Nov 2013
Posts: 22
Thanks Amanda. I gonna try that method with my next shot.

Regards,
TheWino

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