Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Tingling in limbs and feet?

Thanks Tim. I went to my Rheumy...they're doing MRI of brain and back to RO MS. I'm terrified right now. This started before the symponi. I guess time will tell what's going on. I'm trying not to go on the internet to look up symptoms. This is driving me crazy. I guess it's hurry up and wait , and wait and wait.

I'll keep you posted and thank you all for your support. I really need it right now.

Thank you,

Kelly

After several years of symptoms, my daughter started to get tingling and numbness in her legs and feet. And it moved around. That seems to have gone away for the most part now, whether related to diet or growth is hard to tell. But it sounds like you're on the right path, having the dr. rule out anything more than neuropathy!

I had some tingling at level of knee, going down into my foot, along with pain. Pain doc was on it in a flash with MRI and nerve conduction testing. MRI showed sciatica, though the nerve conduction didn't show any deficits. She bumped up the pain meds for a time and showed me some stretches. And did an epidural a couple of times to quiet it down. Since that bad attack, it's kicked up a couple more times for a few days but never to the same level. For me this predated any biologics, so there wasn't a risk of MS, which is likely what the rheumy is ruling out. Good luck.

I have similar symptoms.. Since I've gotten diagnosed my back is not really bugging me, however my knee, shoulder, and wrist are. Signed up for Simponi today, have been doing NSD for a couple months and not sure it's helping my case. Doctor told me I should go back to eating anything. Will see if things get worse.

TO Toronto? I'm in Toronto. If you hear about anything let me know

Hi, that could be several things, as the others have already told you. My sweetie has PsA and diabetes, and between the two his feet have quite a time. I have AS and when my sciative nerve gets involved it can be very bad. Pain shooting down my leg, feet going numb. Broke my foot once trying to stand up when my leg had gone dead.

Anyway, I'm glad you've been to the doc to get this checked. Please do let us know what's going on.

Warm hugs,

msn- several of us also have MS.... which may have a connection

Thanks everyone....MRI'S ARE back...so far nothing really showing MS but visiting Rheumy tomorrow am to review them. I'm pretty much in spasm in my feet all the time and occasionally my calvs and thighs and even my arms. I don't have dizziness or any other symptoms. It's so incredibly frightening. I just hope they get to the bottom it all so we can see if there is another treatment protocol. I'll let you all know what happens And J28 yes I'm in Toronto (not sure if your comment was directed to me or not lol) Take care my new friends,

kelly

This is an old thread but I have the tingling in the back of the legs and in the calves. I get spasms in the bottom of the feet and calves; rarely the thigh. It even feels like small parts of my calve muscles are randomly twitching.

Those above symptoms developed in the past month after a chronic flare in the sacrum started in Dec 2017 (almost six months ago). I've resorted to using NSAIDs about four times in that period mostly for pain in the skull and neck.

Along with the flair up in the sacrum the back of the thighs always burn and I can hardly sit now.

Eating starch seriously aggravates the sacrum and also creates tingling and itchiness in private areas (front and back). I think the starch is feeding the Blactycystits and C. Albicans that I have. I am considering going to a clinic that is willing to treat me for those so called "innocuous" microbes.

I haven't gotten an opinion from a doctor but I imagine that the sensations in the legs and feet are caused by a combination of pressure on the nerves and possibly tissue changes in the muscles from chronic inflammation.

Just sharing.
Kevin