|
Forums33
Topics44,171
Posts519,804
Members14,027
| |
Most Online1,931
Jan 16th, 2023
|
|
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)
Moderators:
· Tim (Dotyisle)
· Chelsea (Kiwi)
· Megan (Megan)
· Wendy (WendyR)
· John (Cheerful)
· Chris (fyrfytr187)
|
|
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
|
|
|
|
Joined: Jul 2013
Posts: 5
New_Member
|
OP
New_Member
Joined: Jul 2013
Posts: 5 |
Hello everyone!
I have had AS since I was 24 (am now 42). During the last 5 years I have been troubled with groin pain. I initially thought I'd strained it, but since it never seemed to go away, thought it more serious. After numerous xrays, scans and trips to various doctors, it was decided that since it wasn't a hernia it must be due to AS. All the scans (MRI, Ultrasound and CT) came back showing nothing. They may of course be right, but I do feel like I've been fobbed off. The pain was cronic for about three years and has come and gone since. The reason I query their diagnosis is that it seems to be triggered by certain activities, then flares up. Driving is the main culprit. I sometimes get a pain/strange sensation on the inner thigh, but the majority of the pain presents itself in the groin. I understand what referred pain is, but can it appear in the groin even when there doesn't seem to be much pain anywhere else? I have the most trouble with my right SI joint, the same side as the groin, so this theory might follow. I did have the right SI injected but this didn't seem to do much good. I have since started Humira and have found my general AS to be improved, though the groin is still somewhat of a problem.
Anyone else experienced this? Is this likely to be caused by AS?
Many thanks!!!
Bill
|
|
|
|
|
Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
|
|
Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
I haven't had that pain, but I've heard others on here talk about it.
PT might be able to help it. They helped just about all the other musculoskeletal issues I have had.
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
|
|
|
|
|
Joined: Jul 2013
Posts: 5
New_Member
|
|
OP
New_Member
Joined: Jul 2013
Posts: 5 |
Hi Sue,
Thanks for posting. Excuse my ignorance but what is PT?
Bill
|
|
|
|
|
Joined: May 2010
Posts: 774 Likes: 1
Magical_AS_Kicker
|
|
Magical_AS_Kicker
Joined: May 2010
Posts: 774 Likes: 1 |
my groin pain is related to my hips and it can last for months at a time
|
|
|
|
|
Joined: Dec 2003
Posts: 1,368
Bronze_AS_Kicker
|
|
Bronze_AS_Kicker
Joined: Dec 2003
Posts: 1,368 |
My groin pain is from my hips as well. It flares and it settles. I sometimes get steroid into the hip joints which helps settle them. When I am flared I can't drive, because it is my right hip that gets really bad, and I can't put pressure on the gas pedal. I would try Physio therapy and then ask for a steroid shot.
Janet
|
|
|
|
|
Joined: Jul 2013
Posts: 5
New_Member
|
|
OP
New_Member
Joined: Jul 2013
Posts: 5 |
Hi Janet
I did have some physic and a steroid injection into the SI joint, but neither did any good. How can you tell if it is your hip causing the groin pain?
Bill
|
|
|
|
|
Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
|
|
Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
Oh Bill, I have had terrible groin pain for the past several years. The pain management dr. said it was from my back. I haven't had one bit of that pain since my surgery 5 weeks ago so evidently it was.
My rheumatologist did an MRI. He said sometimes it is hard to tell between hip and back pain.
Best wishes!
![[Linked Image]](https://www.kickas.org/images/flowers/Smilingsun.gif) Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
|
|
|
|
|
Joined: Mar 2013
Posts: 176
First_Degree_AS_Kicker
|
|
First_Degree_AS_Kicker
Joined: Mar 2013
Posts: 176 |
I get the groin pain and have been told it is from tightness/inflammation in the "hip flexor" or iliopsoas muscles - I just try to do regular stretching on the hip flexors and sometimes get a physio to do some soft tissue work on it. Hope that helps!
|
|
|
|
|
Joined: Sep 2001
Posts: 457 Likes: 1
Warrior_AS_Kicker
|
|
Warrior_AS_Kicker
Joined: Sep 2001
Posts: 457 Likes: 1 |
Had the groin pain off an on for several yrs. Had my right hip replaced in 97 and have not had any since.
J.R.
|
|
|
|
|
Joined: Sep 2001
Posts: 6,164 Likes: 13
AS Czar
|
|
AS Czar
Joined: Sep 2001
Posts: 6,164 Likes: 13 |
Hello, Bill: Absolutely caused by AS; a manifestation of what could properly be termed periostitis. I understand what referred pain is, but can it appear in the groin even when there doesn't seem to be much pain anywhere else? Yes, AS presentation is fully capricious and different from one patient to the next; some will have IBS mainly and others neck and shoulder pain, even aortitis--silent killer! HEALTH, John
|
|
|
|
0 members (),
96
guests, and
72
robots. |
|
Key:
Admin,
Global Mod,
Mod
|
|
|
|
