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Oct 6th, 2025
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Joined: Feb 2011
Posts: 1,968
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Feb 2011
Posts: 1,968 |
Well Donna,
All of my A.S. and Fibro pain is gone! Wish I could still do cartwheels! So I am happy with the results. The pain from the surgery and it's complications are overshadowing everything right now and until I get some answers or things clear up...the jury is still out.
Pea
Diagnosed with A.S. 29 year's ago.
Diagnosed with Fibro 10 year's ago.
Remicade, Intrathecal Pain Pump 2013
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Joined: Feb 2010
Posts: 1,127
Steel_AS_Kicker
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Steel_AS_Kicker
Joined: Feb 2010
Posts: 1,127 |
Hope it all settles down for you Pea and you can enjoy the benefits from no AS pain.
Take care xxxx
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Joined: Feb 2011
Posts: 1,968
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Feb 2011
Posts: 1,968 |
Thanks Aussiegirl,
Glad you are posting. I hope all is well with you.
I had an x-ray to see if the catheter had moved and it came out okay. It was fine so it might be some very angry nerves that got disturbed. Other then that it is still some getting use to not waking up in the morning or waking up in the middle of the night with that excruciating A.S. pain.
Pea
Diagnosed with A.S. 29 year's ago.
Diagnosed with Fibro 10 year's ago.
Remicade, Intrathecal Pain Pump 2013
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Joined: Mar 2013
Posts: 176
First_Degree_AS_Kicker
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First_Degree_AS_Kicker
Joined: Mar 2013
Posts: 176 |
Pea, I'm so pleased to hear that the pain pump is making such a difference to your pain!! Yay!!! I hope they can get the other issues under control soon
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
Wow! How wonderful to not wake up with the pain. I am so glad it is helping you. Is your Mom still there?
![[Linked Image]](https://www.kickas.org/images/flowers/Smilingsun.gif) Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Feb 2011
Posts: 1,968
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Feb 2011
Posts: 1,968 |
Yes, Possi, my mother is still here for one more week. Have so enjoyed having her but she is quite stressed about getting home. My sister who was staying there...well let's just say...nothing went right.
I received my Personal Manger remote control this last week to be able to give myself extra medication (bolus')if I need them. They will take a reading of it, print it out and will be able to reset my pump from their programer to give me more medication when it seems I am needing it more! The great thing is, most of the stiffness is gone as well and the amount of pain med's being dispensed is minimal.
Now when I have a Fibro flare...it doesn't work. They told me it wouldn't but I was anxious to see if it would or not. Still have to take med's for when I have a flare.
Pea
Diagnosed with A.S. 29 year's ago.
Diagnosed with Fibro 10 year's ago.
Remicade, Intrathecal Pain Pump 2013
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
I am so glad it is working for you Pea. I know it has been a very big deal geting to this point. I am glad your Mom is still there too. I would like to have a Personal Manager Remote Control.  The kitchen would be cleaned up, the ironing done and the flower beds cleaned out. Oh, I could think of some more things too. Maybe a pie baked. :o) Hugs, Pea. Possi 
Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Feb 2011
Posts: 1,968
Captain_AS_Kicker
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Captain_AS_Kicker
Joined: Feb 2011
Posts: 1,968 |
 Possi, my dear, that was funny!!!! I wish it did all that too and now my little moms left today so it is mine...all mine again 
Pea
Diagnosed with A.S. 29 year's ago.
Diagnosed with Fibro 10 year's ago.
Remicade, Intrathecal Pain Pump 2013
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