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Oct 6th, 2025
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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Jan 2013
Posts: 121
Journeyman_AS_Kicker
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OP
Journeyman_AS_Kicker
Joined: Jan 2013
Posts: 121 |
I need sleep, have been on steroids for way too long, and not having a good response on them this go around. What's a person to do without sleep , plus pain is harder to tolerate when a body doesn't rest. Ugg, three cycles back to back.
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Joined: Oct 2008
Posts: 895
Master_AS_Kicker
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Master_AS_Kicker
Joined: Oct 2008
Posts: 895 |
Steroids always mess up my sleep, often lucky to get 2 hours of sleep per day. I had to resort to Ambien to get some sleep.
AS symptoms started 1991. Official dx in 2006 with HLA-B27+, fused SIJ, bone spurs in back, extreme rib/hip pain, and other family with SpA. Started Enbrel in 2006 with good results, but stopped in 2010 due to nerve damage (MS) from it. Getting good results with no-starch diet since 2011.
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Joined: Jan 2013
Posts: 121
Journeyman_AS_Kicker
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OP
Journeyman_AS_Kicker
Joined: Jan 2013
Posts: 121 |
I'm for sure needing something !
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Joined: Dec 2003
Posts: 1,368
Bronze_AS_Kicker
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Bronze_AS_Kicker
Joined: Dec 2003
Posts: 1,368 |
Hi
Have you tried a little AMitriptyline, or trazodone ? I don't think anybody sleeps when on steroids.
Good Luck.
Janet
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Joined: Jan 2013
Posts: 121
Journeyman_AS_Kicker
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OP
Journeyman_AS_Kicker
Joined: Jan 2013
Posts: 121 |
Thanks you guys, I will look at the link from Jam 2013 . and jpinperth, I can't take either of those meds.. Darn it !
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Joined: Dec 2003
Posts: 1,368
Bronze_AS_Kicker
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Bronze_AS_Kicker
Joined: Dec 2003
Posts: 1,368 |
There is also Melatonin, which I can't take but many swear by it.
Janet
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Joined: Jan 2013
Posts: 121
Journeyman_AS_Kicker
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OP
Journeyman_AS_Kicker
Joined: Jan 2013
Posts: 121 |
I use Melatonin when I can't sleep, but have been in a brain fog ! sometimes I just can't remember much from pain issues and sleep issues. Thank you
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Joined: Oct 2007
Posts: 1,731 Likes: 1
Diamond_AS_Kicker
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Diamond_AS_Kicker
Joined: Oct 2007
Posts: 1,731 Likes: 1 |
Ugh, so sorry, hope you get some zzzzs really soon!
______________________
Jan
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Joined: Jan 2013
Posts: 121
Journeyman_AS_Kicker
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OP
Journeyman_AS_Kicker
Joined: Jan 2013
Posts: 121 |
Jan, I have stayed off of the site for about a week.... yes, because I went without sleep, and got the steroid rages. I was such a freaking mess ! I was crying all the time, and I mean, like chick crying , just everything felt wrong, I now know what the term , "racing thoughts ," truly means , I quite think that all steroids should be given with tranquilizers too. I thought I had just been on them for about three or four weeks, my mistake, it's been sense about a week before the Thanksgiving Holidays. So the first time in my life I am having severe withdraw symptoms, I thought you got those from having fun in your 20s, not from steroids !  I try to find humor everyday .
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Joined: Aug 2012
Posts: 215
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Aug 2012
Posts: 215 |
So sorry BeckyJ. I also get the racing thoughts, sleepnessness and "steroid rages" (what a good description!) when I'm on prednisone, normally for asthma. My doctor didn't believe me until I went to see him after 7 days at 40mg per day of prednisone, but now he gets it lol!
Last edited by Shirley; 03/06/13 07:35 AM.
AS, IBS, reflux oesophagitis and dysphagia, PCOS/insulin resistance, asthma...
Currently managing my AS with humira, methotrexate, low starch diet and exercises. Also taking omeprazole, metformin etc.
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