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Joined: Feb 2010
Posts: 1,127
Steel_AS_Kicker
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Steel_AS_Kicker
Joined: Feb 2010
Posts: 1,127
Thank you all.
I am starting to think I maybe jinxed myself by posting that link in my other thread about the rheumy with shocking patient care.
I did ask if they were all like this.
I guess the answer is no they are not but some are worse.

I will write the email today. I didn't want to do it yesterday when I was still so riled up about it all and at least by having written this thread I still have clear details.

Thanks again for the kind replies and support.


Joined: Jan 2008
Posts: 21,346
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Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
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Hi Dear,

Hope you are feeling a bit better by now. hugss

I've been to doctors that just treat everything with drugs, others that won't prescribe me anything when I clearly need something, and everything in between. I think each doctors philosophy is a bit different.

BUT, bedside manner is so important. I had a rheumy, Dr. C, who forced Aleve on me. When I told him naproxen gave me edema and gastritis, he just told me to take prilosec. When I told him I was, he told me to just take more. When I told him that wouldn't help the edema, he just told me, "well, if you don't do this, I can't help you." so i went home, took it for a few days, then called to say it gave me edema and gastritis (even with the double dose of prilosec). and so he prescribed two more nsaids. and when they didn't work, he told me there was nothing else he could do for me. (of course there was tons more he could do for me; more there was nothing else he would do for me). But he basically bullied me into the nsaids, made me fear prednisone, and was always condescending.

But the next rheumy, Dr. B, was able to gently convince me to try 3 more nsaids, in different drug classes, simply by his demeanor. The way Dr C treated me, I didn't trust him. Yet Dr. B was asking me to do basically the same thing, but the way he asked instead of told, the way he explained, I felt totally safe doing as he requested.

Its all in how one asks, I believe.

If I were you, I'd call the doctor's office who is supposed to give you the nerve conductance test and ask them if its ok to take the nerve drug, or if you should wait, or if you should take it, but then stop it a certain amount of time before you see them. That's what i would do.

I didn't take that, but a second generation variation of that, Lyrica. It didn't help my pain, and it gave me migraines. But i did try it, but was desperate for anything to relieve the pain.

So, ignoring how he treated you, getting past that, consider if it might help. if you don't think so, then that's your decision, but try not to let his treatment of you cloud your decision about the drug (as I think I often did).

As for the MRI, call them, explain your anxiety, ask them what you can do. Do they have an open MRI that you could use? Or do they recommend a sedative? For me, I take my muscle relaxant, more for the pain of laying in there, but it kinda knocks me out, which is a nice side effect at times.

Then what I do, which is really important is to close my eyes and keep them closed. I accidentally opened them once, started to freak out, took some deep breaths with my eyes closed and was able to calm myself down again. that was the first time when I didn't know I was claustrophobic. Now they always give me a wash cloth or small towel to put over my eyes. If I accidentally open my eyes, its ok, its a really good solution. And oddly, even though they give me earplugs or cotton to put in my ears, I like the white noise of the machine; it along with my muscle relaxant lull me to sleep.

I've had my share of such appointments, so I know how you feel. Sorry you had one too. hugss



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
Joined: Oct 2012
Posts: 101
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Oct 2012
Posts: 101
OMG that is just incomprehensible!!!! Definitely email, call and report, file a complaint with the health dept, wherever you can! Poking you in the breast completely unacceptable...what nerve the [*bleep*]!! Ugh I am so mad for you!!

Know nothing about the meds, but get MRI and do open or take something. Good luck!!!


Jamie, 40
AS / psoriasis
Enbrel weekly injection
Tramadol, Flexeril and Hydrocodone as needed

Joined: Nov 2002
Posts: 6,928
Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928
Likes: 3
Wow!! I hope I never run in to him or his twin.

I am so sorry you had this terrible experience. I had a similar one many years ago with a doctor.

I hope you get some "real" help soon.

Hugs.
Possi

PS As far the MRI, when I get one, I ask for a washcloth to put over my face and music to be played through headphones.
I can pretty well zone out. Don't hestitate to ask for a sedative.


[Linked Image]

Possi
*********************************************************

RUN WHEN YOU CAN,
WALK IF YOU HAVE TO,
CRAWL IF YOU MUST,
JUST NEVER EVER GIVE UP!



"A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS."

"A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."

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