Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group how do i explain this to my family??

Then you aint, darlin, read all me posts...!! Great typoes, woo-hoo - but thank you for that. I do better writing, my brain aint fast enough for dialogue, fighting for vocabulary then find I have to back-track as I've forgotten a whole chunk of stuff - Heigh, we make a good match, can fill in for each other!! <LOL> (((HUGS)))

Oh Elmer - That is sooo horrible to deal with. Have you a good buddy you could share an appartment with, or perhaps search out 'share' ads - might tumble over a great person to share with. That would be ace.

Take heart, grin and bear it for the nonce, it will pass, and you'll come out the other side, laughing.

Bon ccourage - take care -

Hello Kelly,

This topic comes up often and some families are more supportive than others. My father had AS... I was very young maybe 4-5 years old when really started to have back problems. His parents told him to suck it up basically... my mother told him basically the same at first. I recall a lot of verbal fights at dinner tables... I assume some had to do with his AS as it was this time he had some back surgeries for his "back pain".

But my mother also helped him when he finally got diagnosis for AS. She worked with the doctors and then ensure my father kept up with meds, stretching and other exercises he could handle.

I have had it a bit easier with family as most learned what disease was with my fathers experience.

Will involve communication and opening your dad's eyes to the disease... it is very real, but not easy to make everyone understand.

Best to you,

Tim

i just want to thank everyone for their replies.. this seems like something we all have to deal with, and it looks different for everyone.
i really appreciate the feedback and the links to sites and videos.
i think it will be a work in progress


kelly

Pea that booklet was amzaing. helped my husband alot. He is so much more understanding now, and even with the Vertigo now he is understanding. I got a bunch of pamphlets about AS from the Arthitis society, they are aimed at the newly diagnosed but help explain it. I am going to give them to my husband to share at his work, since he doesnt understand it totally and his description is crazy funny. accurate knowledge is key to proper understanding.

Hi Kelly, If you look to Bringham Young womens hospital, they have some good information about women and AS.

Cindy

Hi Kelly,

Have you made any moves yet to talk to your family? I hope it has gone well. It takes a lot of time and a lot of patience.